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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


hi all...i hope you all are well as can be expected..and jenna sorry to hear about your RSD as well as all of you that read this..ummm i have had RSD since 2002 and what i wanted to say as far as medications are concerned is that medications and choices are between YOU and your doctor...you gotta do your homework too as far as choice too i think..and i think and agree as most of you do that there is not a blue print or it is not written in stone as to what med works and what everybody should take...but my comments are about narcotics...for me without finally being put on a narcotic and i take the duragesic patch..at this point in time for me the patch has helped alot..so many many other medications we tried just did not work..my pain is whole body and not just from RSD but other spine problems now and perhaps RSD caused all this but i had no relief at all from the other meds many of you have mentioned..my pm talked about a scs but i'm just not ready to go there yet. i mean the implant process..its too scary for me right now..ummm for me, i take neurotin, it helps for some arm and leg pain. and if i forget a dose or am late those types of pain incease and the redness in both my hands becomes more blood red..i take zanaflex for those deep jerking muscle cramps..and elavil and cymbalta for (i like to say..mind control) and for pain they say..i have ultram, daracet, vicodin, ultracet and there is more but i cant think right now but those just did not help...so the patch and the other meds do help lower my pain level alittle..in ending the choice of meds have to be between you and your doctor and i advise doing your homework too..this site and the people here offer a wealth of information and Support and i am glad this site is here..thanks to all of you..there are risks with all medications so you can get alota information here and more over Talk to your doctor...
thanks for reading, but this is what this site is for. to offer opinions and helpful information.
i hope you and all of you have a LOW pain day and if possible have a NO pain day...





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