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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index

ok so as most of you know, or don't know, i have rsd in my left arm from like my elbow down. it pretty much stops at my wrist (as far as pain goes), but i get swelling and temp. changes in my hand/fingers. when i was in p.t. they said that i was using my muscles in my shoulder when i'd do simple tasks with mu hand to try to subconciously create less pain while doing things like pick things up, hold things, etc. so they had me do simple exercises to retrain my hand to "work normal" again so my shoulder, right below my shoulder blade and the top part by my neck wouldn't tense up and get so tight, cause by the end of the day it'd hurt just as much as my arm almost. so i'd do the exercises, and they'd massage out my shoulder like every other day since it'd be like one huge knot. but eventually it'd stop getting all tense like that. well i'm still doing the exercises, about 2-3 times a weeks now, not every other day since i work and i've built up the muslces already, and they've been used to working right again for sometime now. but in the last week or 2 my shoulder has been killing me again. i started doing the exercises more frequently again, and that hasn't helped. does anybody have any suggestions? i don't know if its from my hand this time... i have been having more frequent spasms, and i do take baclofen for them, which does calm them down. both me and my mom were thinking a while back that a muscle ewlaxer might help this, like the spasms make my shoulder tense up, and since i'm only supposed to take the baclofen 3 times a day.... i don't know, that was just something she brought up the other day again, so i thought i'd through that out there, and see what kind of ideas you guys could give me to try and help my with my shoulder, i really don't think its spreading, cause i mostly feel it at night, like after i'm done being on the go, and i try to relax, i just can't. my boyfriend will massage my shoulders/back everynight, it'll help my left shoulder a little but not too much, it just won't stop being all tense. can anyone suggest something? i do see the new pm on the 21st, so i'll definately bring it up with him, but for the mean time, i'm looking to all of your wonderful wise minds out there! ;) i hope you all are doing and feeling well, let me know what ya think! thanks~ :wave:

I have RSD affecting my left arm, shoulder, arm , and hand. I have very little use of my left hand.

My neck muscles and down the left side of my back are always tense.
Nobody seems to know why but they are. Alot of times the pain from there is equal to or exceeds that of the RSD.

I understand what you are going through.

I dont take much medication by choice because I don't wanna live as a zombie but recently I have had some really bad episodes and have been taking a good bit of pain meds.

Wishing you well and God Bless,


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