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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Ok,

As you can see I post a message about leaving for my 1st block.

The outcome lasted for 2 1/2 hours for the block.

So I read and research these lumbar blocks. Most of the research say that blocks help with the diagnosis. I'm seeing some of the best known doctors who specializing in RSD in different fields.
As I studied and research RSD and Blocks, once the block is injected in you. If you get NO RESPONSE, as some people have claimed: The question I have is: Do you have the right diagnosis? the reason I ask is,
1. When the Lumbar block is injected RSD will response instantly.
(It is uncontrollable nerve system to humans, and RSD will have a imm. response to the injection).
From what I have read and the DR's told me the block also determines the differnce between a nerve entrapment(NOT RSD), or RSD.
Since there are so many Doctors that have their own theory, and LOTS that have not a clue to RSD. Is it being over rated in cases. So I would like to hear from others
1. What happen after the block was done?
2. How did you react to the block?
3. How long have you had RSD?

I had my first block yesterday, My foot reacted to the block had no pain for about 2 1/2 hours and then the pain came back starting with the coldness first then went from there. The next day (today) I'm back to before the block.The reason I'm writing this is because: There is alot of the bad stories people write and how it hurts and did not work. When I went in I was so nervous :bouncing: my heart was 127, they told me to calm my heart rate down. Otherwise they would have to do it another day.
So to everyone who is wanting to know about a block, its not bad at all.
Well for me, I did not feel anything, I only had the equilvant to 6 martini's through the IV :D (feeling great at the time). It was later that I felt it when the local wore off.

PLEASE TELL US YOUR STORY. I know most people like myself who are new to this you live in deniel, for the fact there are no answer to the point. Since every RSD case feels so different, Doctors have a hard time telling us whats next. Its always best to hear from you living with RSD.
Hi Michelle,

Further blocks may help you. Lots and lots of people do not respond to their first block. That is normal. This can happen for a variety of reasons. Sometimes the doctor does not hit the right spot. Doctors who do several injections per week are probably the best to be doing them. Depending on what type of block you are getting, they may need to move the site of injection. The blocks I've had were Lumbar Sympathetic blocks because I have RSD in my lower extremity. The first injection was done at L4, and I had no relief. Additional blocks were done at L3, and L2 and I got relief from those. Did your doctor use fluroscopy to find the nerve? Did he use thermography or sensors to measure temperature after the block?

Some people simply don't respond at first. I don't think doctors have a really good idea of why that happens. In fact, they still don't know exactly why blocks help and why the effects often last much much longer than the medication is supposed to last. RSD is poorly understood in general still.

When you make your next appointment, ask for extra time with the doctor. This way you can ask him to explain RSD and your treatment options. Knowing as much as you can about this is important, especially since there doesn't seem to be a set protocol doctors are following when it comes to meds, therapy, blocks, and other more invasive procedures. Try to read as much as you can. The web is a great source for info. Unfortunately, I can't post any links that would help you since it's againts the rules on this board, but do a google search, using the term RSD and Complex Regional Pain Syndrome, and the first page of results contains some good, accurate websites.

Gina :)





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