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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


THANKS FOR ALL OF THE REPLIES FROM ALL OF YOU! I'VE LEARNED THINGS I DID NOT KNOW - THIS IS A "GOOD" THING! :) SO MANY SAD STORIES. I THOUGHT "RSD" WAS SOME [B]REALLY RARE[/B] DISEASE OR SOMETHING ONLY I (or a few others) HAD. I WANT TO SAY "IT'S NICE TOO KNOW THERE ARE OTHERS OUT THERE" - BUT THAT WOULDN'T COME OUT RIGHT, BUT I THINK YOU ALL KNOW JUST WHAT I MEAN!!

TO UPDATE YOU ALL RIGHT NOW (just last week) I WENT TO THE "DEFENSE QME" (insurance co choosen - qualified medical examiner) - WHO WILL WRITE A PERMANENT & STATIONARY (P&S) REPORT; on 9/24 I GO TO THE "APPLICANTS QME" (my atty choosen qualified medical examiner) WHO WILL DO THE SAME - WRITE A P&S REPORT (which will be 2 of the 3 p&s reports that will be "rated"); and FINALLY GETTING MY PRIMARY TREATING DR. TO WRITE A "P&S" REPORT ISN'T EASY, AS HE DOES NOT BELIEVE THAT I HAVE ACTUALLY REACHED A PLACE WHERE 6 MONTHS CAN GO BY WITHOUT ANY CHANGES IN MY SYMPTOMS; AND HE ONLY WRITES P&S REPORTS ONCE 6 MONTHS OF NO CHANGE HAS BEEN ACCOMPLISHED. UNTIL SUCH TIME THAT I AM "P&S" - NOTHING HAPPENS (as far as concluding my case) - LIFE JUST PASSES ME BY - IT DOESN'T EVEN SLOW DOWN ANYMORE.

I HAVE BEEN TOLD THAT [B]RESOLVING MY CASE[/B] - WILL MAKE ME [B]"FEEL" [/B] SO MUCH BETTER. I THINK I WILL FIND THIS TOO BE TRUE.

MOST OF YOU ALL SEEM TO HAVE A SEMI POSITIVE ATTITUDE ABOUT THE OUTCOME OF YOUR RSD. WHERE DOES THIS COME FROM? NO ONE, NO DOCTOR, NO ATTY, NO MEDICAL ANYTHING HAS LED ME TO BELIEVE THAT ANY OF THE "TREATMENTS" OUT THERE, TOGETHER WITH LOTS OF MEDICATION (something I forgot to mention - i am on 180mg MS contin per day; 1800 mg neurontin; 3 tylenol/codine #4 per day, paxil & klonopin & i've gained 90 lbs since 5/02) IS 100% EFFECTIVE - I'VE BEEN TOLD QUITE THE OPPOSITE - MEANING THAT - ALL OF THE TREATMENT IS [B]TEMPORARY[/B]; AND LETS SAY FOR EXAMPLE - MY DR SAYS THAT WITH "IV LIDOCAINE INFUSION" TREATMENT THE PAIN RELIEF IS GREAT UP TO 85%, BUT ONLY LAST A MAXIMUM OF 6 MONTHS; AND A HUMAN BEING (health wise) SHOULD NEVER HAVE MORE THAN [B]"2"[/B] OF THIS FORM OF TREATMENT IN A LIFE TIME. SO TO ME - EVERYTHING THEY OFFER ME - IS ONLY A "TEASE" FOR LACK OF A BETTER WORD.

CAN YOU ALL HEAR MY FRUSTRATION OR WHAT? I'M SORRY. HERE I GO VENTING AGAIN! HEY GUYS, BELIEVE ME I COULD GO ON AND ON, IF I WASN'T IN SO MUCH PAIN (right now) FROM JUST TYPING ALL THIS - BUT WHEN I THINK ABOUT WHAT I USED TOO TYPE (72wpm) AND NOW I AM "CHICKEN PECKING" - I GET SO PISSED!!!! THIS "RSD" WASN'T SUPPOSE TO HAPPEN - IT SHOULDN'T BE!!! I WAS SUPOSE TO GO "BACK TO WORK" 3 TO 6 MONTHS AFTER MY LAST SURGERY (in otherwords be out of work temp for only 1 year) THEN MY LIFE WOULD BE "BACK TO NORMAL"! I WOULD ABOUT DIE, I THINK, IF I COULD COME CLOSE TO "NORMAL" AGAIN!!!! SORRY HEAR I GO AGAIN, VENTING. I CAN'T TYPE ANOTHER WORD (it hurts), SO YOUR ALL LUCKY - I HOPE I AM NOT TO INTRUSIVE - IS ANY ONE IN CALIFORNIA? GOODNIGHT & THANKS FOR LISTENING!!! LISA





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