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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


:wave: Hi everyone! Wow reading these lasts posts, brings me back down memory lane.
First welcome Samora to this site! We all try to help everyone & ask we'll all try to help, or vent & we'll all try to sympathise & help. If you had carpal tunnel surgery in 7/2004, & have RSD, get the nerve blocks approved ASAP. The first few months are the most critical time to get them, for a good chance for it to go in remission. My w/c ins. denied them for 11 months, & it was too late. Also like Kate says, is to move your hand as you can tolerate it. I have a nerf football that I gently squeeze, especilally when driving, if the pain is too bad. As far as surgery goes, yes more surgeries can spread the RSD. Try the nerve blocks first & be persistent.
And Hi Sandson, I've never met you yet, although I'm fairly new here myself. You're definitly right about the IME. I had 6 before I closed my case. When they found out I had RSD they started spitting out 3 a month. A shrink, an ortho & a neuro. The neuro IME(my 5th & 6thIME) said I had RSD & ordered the nerve blocks, but it was too late. I have RSD in the left upper extrmity & spreadin now, into the left leg, & the stellegate nerve blocks HURT. I screamed litterally. I had a good Dr. do them, but after 2 , all my doctor's agreed no more. :rolleyes: It just proved that I had SIP(sympathetic independent pain) VS. SMP(sympathetic maintained pain). Which is good to know. And wc is notorious for giving you late TTD checks. Mine always did at Xmas. I just wrote a letter to the State Ins. Commissioner and filed a complaint against the ins. co. The wc Ins. co. praysthat you either go on welfare, die, or close your case, & they do everything they can to make your life miserable. :rolleyes:
Last Lisa, you poor thing. I know how hard is it too not be able to type. After I closed my case, I bought a brand new custom built computer with voice activated software installed. The software's not that expensive really. You just speak into your headset & it types for you. :) Glad you're making some progress in your case. The QME/IME report will come back crooked, saying it's all in your head, your MRIs aren't that remarkable, etc. Don't even worry about that. I saw a physcologist for 2 years, who really helped me through all this mess. My doctor's wanted me to see a shrink that specialized in chronic pain, but wc denied that. Finally they found a shrink that treats adolescents, to take my case, & I really liked him. When the insurance companies found this out, they started referring more cases to him. Pretty soon, when a new case was offerred his 1st ? was, who is the ins. co? the 2nd ? was, who is the adjuster? After a year of this he quit taking wc cases, cause he wasn't getting paid either! Go figure. But try & see if there is one in your area that specializes in chronic pain, get their resume & have your attorney approve it first. It really helps. About your weight gain, there are other threads on this board that say the neurontin will cause weight gain. I went off of it, because it disagreed with me, so check out the other threads for a different antiseisure med. And the lidocaine injections--iffy too. 2 a lifetime? You're only supposed to have 3 cortizone shots a year, & I've known people who get them every 3 weeks. My physical therapist said those people will end up like most football players. Sure it numbs the pain, temporarily, but it also shortens their career big time--they have big bucks & a permnately destroyed physical condition. And don't worry about going back to work right now. Work on getting the RSD under control, seeing a chronic pain shrink, & hopefully it will put you in a better frame of mind to deal with the wicked game of chess that you're in :D
I''ve rambled enough. Take care-- Aloha Skooze
Hi ya all :wave:

I guess you can say I am new here. Wow, what a bummer way to get here too.

Yes, Diana, you need to get you a hire powerful attorney, like yesterday. I've been on w/c temporary disability for more than 2 years now. I was terminated after the w/c doc said I could no longer perform my job that I was hired for. Guess what??? There's a relatively new law that says employers are allowed to do that!!! The adjusters attempt almost once a week or so to cut me off everything. Financially, medically, any way they can. As soon as I think I can go back to work, things go bad again. I refuse to get my hopes up anymore.

I think I had this RSD thing for about 9 months now and no one was willing to confess to it, just pump me full of drugs. I believe it came in after the 3rd surgery for carpal tunnel and ligment repairs. I'm not a fan of stellate blocks because THEY HURT and they DON"T work. I now have an excellent doctor who has done what they call a Britylium block in my arm and I do get good relief from that. This doctor told me he will do them so long as they work, no matter what the adjusters say. :bouncing: It took a court order to get it, but, thank god for it.

I am learning alot as time goes by, things I wish I had known 2 years ago. I have found that a Paraffin wax machine is great for pain relief. The use of a bubble spa in the tub really helps too, with Lavender Therapy soak. Both can be bought at the local Wal-Mart for under 40.00 each. Yup, workers' comp does have to reiumburse you for them when the dr writes the order. I've seen several posts now where people talk about the itching and so forth which is hard to deal with when you already have a sleep disorder. Consider going out and buying sheets with a higher thread count, the higher the better.

When you talk to an attorney, make sure you leave nothing out. Good luck and take care. Get mad if you have to and just say sorry to the attorney, but let him know your in dire need of his help!!! And, remember that stress is the worse devil in this RSD crap!

See ya later :wave:

P.S. I love these cute little icons!!





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