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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


:wave: Hi - I have been reading all posts on this board for sometime and I can't seem to find anyone writing about "not working" because of RSD and its diabling ways. I started out wrkng full time + for a solo lawyer and my primary job was transcribing; this inturn led to bilateral carpul & cubital tunnel syndromes, and in 5/02 I was placed on Work Comp Temp Disability. All (4) individual injuries needed "release" surgery. I had all 4 nerve release, plus 2 nerve transpostions (@ elbows - re: cubital) within 1 year. I was diagnosed w/rsd after my 3rd surgery (which at that time I had NEVER heard of "rsd" or "crpsII" or anything like it before in my life, its not one of those "warnings" they pitch right before you go under) and was told that either I would definately have "perm damage" if I don't "release" the last trapped nerve (Left carpul @ wrist) - but I was afraid of the pain that wasn't going away in my Right hand & arm and I am LEFT handed and my left hand was not yet in "rsd pain". The dr.s said there was a slight chance (up to 50%) that rsd would be prevelant; but it was a 100% that if no surgery - pain and perm damage. Stupid me, had the surgery & guess what? Yup - wouldn't you know now fully diagnosed with RSD in ARMS, FACE, BTWN SHOULDER BLADES & TOPS OF MY FEET. I've had 11 bloks (only 48hr max of some relief) - i ve been told by my drs that the only things left to do "MIGHT GIVE SOME RELIEF", but that I will live with this PAIN for LIFE, AND I NEED TO LEARN TO "COPE"! The remaing procedures offered too me now are: IV LIDOCAINE INFUSION; MORPHINE PUMP; EPIDURALS (at neck); and SPINAL CORD STIMULATOR. How does one choose? :eek: I am trying to find out how RSD / CRPSII suffers having got their initial injury(ies) then RSD from a work related injury fan out at the end. Social Security Disabiliity - has found me to be 100% disabled and I am receiving "SSDI" in addition to TTD (temp total disab) - so will the Comp Board and "Comp Disability Rators" find me 100% too?

Can anyone tell me how their work comp case eventually came to an end or settlement offer ($value) if any etc..... any info would be appreciated.

So tired of the terrible pain RSD causes me. So sorry for all who suffer. Sorry for such a long "into" or "vent"ing (as I would call it).

take care of yourselves,

lisa
THANKS FOR ALL OF THE REPLIES FROM ALL OF YOU! I'VE LEARNED THINGS I DID NOT KNOW - THIS IS A "GOOD" THING! :) SO MANY SAD STORIES. I THOUGHT "RSD" WAS SOME [B]REALLY RARE[/B] DISEASE OR SOMETHING ONLY I (or a few others) HAD. I WANT TO SAY "IT'S NICE TOO KNOW THERE ARE OTHERS OUT THERE" - BUT THAT WOULDN'T COME OUT RIGHT, BUT I THINK YOU ALL KNOW JUST WHAT I MEAN!!

TO UPDATE YOU ALL RIGHT NOW (just last week) I WENT TO THE "DEFENSE QME" (insurance co choosen - qualified medical examiner) - WHO WILL WRITE A PERMANENT & STATIONARY (P&S) REPORT; on 9/24 I GO TO THE "APPLICANTS QME" (my atty choosen qualified medical examiner) WHO WILL DO THE SAME - WRITE A P&S REPORT (which will be 2 of the 3 p&s reports that will be "rated"); and FINALLY GETTING MY PRIMARY TREATING DR. TO WRITE A "P&S" REPORT ISN'T EASY, AS HE DOES NOT BELIEVE THAT I HAVE ACTUALLY REACHED A PLACE WHERE 6 MONTHS CAN GO BY WITHOUT ANY CHANGES IN MY SYMPTOMS; AND HE ONLY WRITES P&S REPORTS ONCE 6 MONTHS OF NO CHANGE HAS BEEN ACCOMPLISHED. UNTIL SUCH TIME THAT I AM "P&S" - NOTHING HAPPENS (as far as concluding my case) - LIFE JUST PASSES ME BY - IT DOESN'T EVEN SLOW DOWN ANYMORE.

I HAVE BEEN TOLD THAT [B]RESOLVING MY CASE[/B] - WILL MAKE ME [B]"FEEL" [/B] SO MUCH BETTER. I THINK I WILL FIND THIS TOO BE TRUE.

MOST OF YOU ALL SEEM TO HAVE A SEMI POSITIVE ATTITUDE ABOUT THE OUTCOME OF YOUR RSD. WHERE DOES THIS COME FROM? NO ONE, NO DOCTOR, NO ATTY, NO MEDICAL ANYTHING HAS LED ME TO BELIEVE THAT ANY OF THE "TREATMENTS" OUT THERE, TOGETHER WITH LOTS OF MEDICATION (something I forgot to mention - i am on 180mg MS contin per day; 1800 mg neurontin; 3 tylenol/codine #4 per day, paxil & klonopin & i've gained 90 lbs since 5/02) IS 100% EFFECTIVE - I'VE BEEN TOLD QUITE THE OPPOSITE - MEANING THAT - ALL OF THE TREATMENT IS [B]TEMPORARY[/B]; AND LETS SAY FOR EXAMPLE - MY DR SAYS THAT WITH "IV LIDOCAINE INFUSION" TREATMENT THE PAIN RELIEF IS GREAT UP TO 85%, BUT ONLY LAST A MAXIMUM OF 6 MONTHS; AND A HUMAN BEING (health wise) SHOULD NEVER HAVE MORE THAN [B]"2"[/B] OF THIS FORM OF TREATMENT IN A LIFE TIME. SO TO ME - EVERYTHING THEY OFFER ME - IS ONLY A "TEASE" FOR LACK OF A BETTER WORD.

CAN YOU ALL HEAR MY FRUSTRATION OR WHAT? I'M SORRY. HERE I GO VENTING AGAIN! HEY GUYS, BELIEVE ME I COULD GO ON AND ON, IF I WASN'T IN SO MUCH PAIN (right now) FROM JUST TYPING ALL THIS - BUT WHEN I THINK ABOUT WHAT I USED TOO TYPE (72wpm) AND NOW I AM "CHICKEN PECKING" - I GET SO PISSED!!!! THIS "RSD" WASN'T SUPPOSE TO HAPPEN - IT SHOULDN'T BE!!! I WAS SUPOSE TO GO "BACK TO WORK" 3 TO 6 MONTHS AFTER MY LAST SURGERY (in otherwords be out of work temp for only 1 year) THEN MY LIFE WOULD BE "BACK TO NORMAL"! I WOULD ABOUT DIE, I THINK, IF I COULD COME CLOSE TO "NORMAL" AGAIN!!!! SORRY HEAR I GO AGAIN, VENTING. I CAN'T TYPE ANOTHER WORD (it hurts), SO YOUR ALL LUCKY - I HOPE I AM NOT TO INTRUSIVE - IS ANY ONE IN CALIFORNIA? GOODNIGHT & THANKS FOR LISTENING!!! LISA





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