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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi Everyone, :wave:

I'm sorry I haven't been around....it's been pretty depressing around here. My husband Joey, who's been battling his RSD in his left ankle for approx 18 mos now, officially made the jump from being 'chemically dependant' to 'addicted', and his Pain Management Dr has cut him off of ALL meds! :eek:

After going through just about EVERY pain med in the book (or so it seemed), Joey really did the best on double strength Percocets (10/325), 8x/day. He's also been getting monthly IV Lidocaine Infusions, and last month the Dr gave him a shot with some kind of novocaine/steroid mix directly into the ankle after Joey was having horrible pain shooting up his leg into his hip and (private areas! :eek: ). On his next visit, the PM Dr said he no longer wanted him taking all the Percocets, since they are supposed to just be used for breakthrough pain, and that he was giving him the Duragesic (Fentanyl) Patch for long term pain (50mg/3days). Joey did not want this, since he went through a bunch of these patches last year, up to 200mg and they made him very addicted then...at that time he progressed to a long acting Morphine called Kadian that made him violently ill the first time he used it, so ill that he swore off everything and was immediately thrown into a terrible withdrawl. But I was not with him at this appt, and even though he told the Dr he didn't want the patches, he didn't object strongly enough, and let the Dr bully him into taking the prescription. I should never have let him put that patch on, but since it was such a lower dose than he had had last year, we figured we'd give it a try. :nono:

A few nights later, I came home from my nighttime job to a frighteningly horrible sight, Joey had gone way overboard on his meds, and had gotten a needle from a needle exchange program and shot crushed up Percocets! He was horribly sick in the bathroom, and I had to call 911! When they showed up, everyone was in an uproar about the needle, while I'm like, "Help my husband please!" Luckily my children were in Florida for the month with my parents or they probably would have confiscated them!! They took him to the hospital, but I stayed home, very angry at him for allowing his proclivity for the needle to reawaken from his teenage years 30 yrs ago (a fact that he had never revealed to any of his Drs).

The paramedics took his Percocets so they could count them, and of course they never give them back. So, I called his Pain Dr to alert him to what happened in case Joey called for a refill, and I also called his Mental Health Nurse Practitioner...everyone was shocked. We made appts to see both. His Mental Health nurse will still help him with the anti-depressants and valium, but the Pain Dr was very mad and said he could no longer give him ANY medication, and that he thought he should see a Psychopharmacologist for an evaluation and go into rehab. I asked about his Lidocaine Infusions, and he grudgingly said he could still do those if he wanted. I made the point of saying that before the needle it was OK that he was "Chemically Dependent", but NOW he's ADDICTED? :mad:

I'm angry with the PM because he's been such a drug pusher from the start that it seems like alot of this blame lies on him, although I certainly do not consider Joey blameless, I'm still very angry at him too, and should really go into my own counseling. At that appt Joey was almost out of his patches, and I asked the Dr about just cutting him off suddenly like that, that he'd suffer withdrawl, so he grudgingly said he'd give him one last script for (5) 25mg patches to taper down with that would last 2 wks, then that would be it! (Joey has approx 4-5 days to go). Joey was supposed to see the Psych Dr during these 2wks, but the scheduling secretary (who is ALWAYS a witch!) refused to have anything open until mid OCTOBER!! So Joey is angry, and already skipped an appt he had last week with the PM for another shot in his ankle...he says he's never going back to him.

So, in the next week I'll have a husband in withdrawl and who'll be in incredible pain. He looks terrible, he's lost so much weight over the past months, and all he eats is ice cream and Ensure. I made him make an appt with his Mental Health NP for this week, because I'm afraid of him becoming suicidal, needing higher Anti-depressants, and probably higher Valium since I expect to have a pretty stressed out Joe on my hands.

He's talking about looking into having either the Spinal Cord Stimulator or the Pain Med Pump implanted by someone else, but he'd never even discussed that route with his current PM, and now we just got a notice that our Heath Insurance coverage will probably be changing with the new year so that we will have to pay 20% of things instead of just a copay...along with $1000 deductible....and if it's $50,000 that's $10,000...OMG, we can't pay that!

Well, thanks for letting me unload on you guys! :( Life's not very fun around here anymore. I know it isn't for any of you either, and I'm sorry this terrible disease has to ruin everyone's happiness.

Has anyone ever tried Hypnosis to help mask the pain? Just wondering. I should probably just start a new thread asking that but I'm too lazy right now.

I hope you all have low pain days,
~Ange~
:wave: [QUOTE=AngeInBoston]Hi Everyone, :wave:

I'm sorry I haven't been around....it's been pretty depressing around here. My husband Joey, who's been battling his RSD in his left ankle for approx 18 mos now, officially made the jump from being 'chemically dependant' to 'addicted', and his Pain Management Dr has cut him off of ALL meds! :eek:

After going through just about EVERY pain med in the book (or so it seemed), Joey really did the best on double strength Percocets (10/325), 8x/day. He's also been getting monthly IV Lidocaine Infusions, and last month the Dr gave him a shot with some kind of novocaine/steroid mix directly into the ankle after Joey was having horrible pain shooting up his leg into his hip and (private areas! :eek: ). On his next visit, the PM Dr said he no longer wanted him taking all the Percocets, since they are supposed to just be used for breakthrough pain, and that he was giving him the Duragesic (Fentanyl) Patch for long term pain (50mg/3days). Joey did not want this, since he went through a bunch of these patches last year, up to 200mg and they made him very addicted then...at that time he progressed to a long acting Morphine called Kadian that made him violently ill the first time he used it, so ill that he swore off everything and was immediately thrown into a terrible withdrawl. But I was not with him at this appt, and even though he told the Dr he didn't want the patches, he didn't object strongly enough, and let the Dr bully him into taking the prescription. I should never have let him put that patch on, but since it was such a lower dose than he had had last year, we figured we'd give it a try. :nono:

A few nights later, I came home from my nighttime job to a frighteningly horrible sight, Joey had gone way overboard on his meds, and had gotten a needle from a needle exchange program and shot crushed up Percocets! He was horribly sick in the bathroom, and I had to call 911! When they showed up, everyone was in an uproar about the needle, while I'm like, "Help my husband please!" Luckily my children were in Florida for the month with my parents or they probably would have confiscated them!! They took him to the hospital, but I stayed home, very angry at him for allowing his proclivity for the needle to reawaken from his teenage years 30 yrs ago (a fact that he had never revealed to any of his Drs).

The paramedics took his Percocets so they could count them, and of course they never give them back. So, I called his Pain Dr to alert him to what happened in case Joey called for a refill, and I also called his Mental Health Nurse Practitioner...everyone was shocked. We made appts to see both. His Mental Health nurse will still help him with the anti-depressants and valium, but the Pain Dr was very mad and said he could no longer give him ANY medication, and that he thought he should see a Psychopharmacologist for an evaluation and go into rehab. I asked about his Lidocaine Infusions, and he grudgingly said he could still do those if he wanted. I made the point of saying that before the needle it was OK that he was "Chemically Dependent", but NOW he's ADDICTED? :mad:

I'm angry with the PM because he's been such a drug pusher from the start that it seems like alot of this blame lies on him, although I certainly do not consider Joey blameless, I'm still very angry at him too, and should really go into my own counseling. At that appt Joey was almost out of his patches, and I asked the Dr about just cutting him off suddenly like that, that he'd suffer withdrawl, so he grudgingly said he'd give him one last script for (5) 25mg patches to taper down with that would last 2 wks, then that would be it! (Joey has approx 4-5 days to go). Joey was supposed to see the Psych Dr during these 2wks, but the scheduling secretary (who is ALWAYS a witch!) refused to have anything open until mid OCTOBER!! So Joey is angry, and already skipped an appt he had last week with the PM for another shot in his ankle...he says he's never going back to him.

So, in the next week I'll have a husband in withdrawl and who'll be in incredible pain. He looks terrible, he's lost so much weight over the past months, and all he eats is ice cream and Ensure. I made him make an appt with his Mental Health NP for this week, because I'm afraid of him becoming suicidal, needing higher Anti-depressants, and probably higher Valium since I expect to have a pretty stressed out Joe on my hands.

He's talking about looking into having either the Spinal Cord Stimulator or the Pain Med Pump implanted by someone else, but he'd never even discussed that route with his current PM, and now we just got a notice that our Heath Insurance coverage will probably be changing with the new year so that we will have to pay 20% of things instead of just a copay...along with $1000 deductible....and if it's $50,000 that's $10,000...OMG, we can't pay that!

Well, thanks for letting me unload on you guys! :( Life's not very fun around here anymore. I know it isn't for any of you either, and I'm sorry this terrible disease has to ruin everyone's happiness.

Has anyone ever tried Hypnosis to help mask the pain? Just wondering. I should probably just start a new thread asking that but I'm too lazy right now.

I hope you all have low pain days,
~Ange~[/QUOTE]

OMG!!! How awful for you and your hubby to go through!!!! First of all they should have never ever dropped him from 200 mcg. In fact it sounds like they OVER MEDICATED HIM!!!!!!!!!!!! What they should have done was dropped him down to a 100 maybe 125 mcg instead of switching him to another drug all togather especially knowing that he was addicted to them. I'm saying this because my hubby is an ex drug and alcohol counselor and as a pain patient. That doctor was not fair with him at all. You don't give 200 mcg then put him on the next year with only 50 mcg!!!!! As for youre hubby shooting the perc's. Don't get too upset with him even though he should have told his doc about his previous drug problem. My husband stresses it everytime he goes to the doc. But anyone with as much pain as rsds causes and especially if they don't have the right pain meds to get him out of the pain yeah hubby said if he was treated like that and if he was in so much pain he said hell yeah I'd have done the same. What doc's don't realize is rsds is very under treated or doctors don't believe the disease is real when in fact it is very real. In my husbands 8 years as an experienced drug counselor he says anyone in pain will do anything to get out of pain. You really have to have a good trusting relationship with your doc. I don't know if this is trhe same doc that gave him the 200 mcg patches or not but if it is he over medicated him then under- medicated him. Youre hubby broke that trust with that doc. I have no ideas on how to re establish that trust. First of all that doc should not have bullied him into takeing that script. 2nd he should have never ever pulled him off ALL his meds. The only thing i can suggest is continue to be his pain "advocate". Some pain management nurses will do this. Something needs to be done. I have never heard of anyone with rsds getting pulled of pain meds. Since they are usually on it the rest of his life. Youre hubby should take all his meds EXACTLY as prescribed even if he does hurt. Constantly calling the doctor will rais an eyebrow and he'll think your there seeking a high and not pain relief. Maybe even tell the doc or a new doc that you will be the nurse to him. YOU will keep his meds under lock and key and give it to him accordingly. I don't kow this is an awful awful mess he has gotten himself into. Try finding another doc if you can this one sounds like a real butthead. and tell hubby no matter how bad the pain gets never ever do that crap or take more then you should, youre just asking for trouble. good luck to you hon. i understand my hubby has rsds too amongst other crap. but luckily we have a good honest communicative relationship with our doc that does believe our pain is real. So from one wife to another. I'm here if you ever want to talk. Good luck to you.





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