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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi Elaine

My rsd was 4 years gone when I had the infusion. But I know of a man who had rsd for I think 14 years and the first infusion lasted 3 months for him. It doesn't seem to matter though how long you've had rsd, some people respond to it, some don't. My doctor said he'd given up trying to predict how well each person would respond. I thought I had a fair chance, as I have a pain gel that contains ketamine and its the only thing that gives me total pain relief everytime I use it.

Jokehakk, going into this I was just hoping it would work while the iv was still in, anything after that was a bonus. Then after the first day of the iv coming out and I was still pain free (23dec) I hoped that I would get Christmas without pain, so I could enjoy it with my kids. So to go this long, a month without pain, is just overwhelming. I know its coming back soon, I think you'd only get very depressed if you expected it to last for months and it didn't, so I'm just taking it day by day and any extra day it lasts is just a miracle.

I go back to the pain doc on Feb 3rd, I'd definately have a second go when this wears off, the subsequent infusions often give you double the pain relief time that the first does. I'll let you know how i go!

x Kate





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