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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index

New Member
Jan 30, 2005
Hi everyone,

I was diagnosed with RSD on November 1, 2004. The RSD is a result of my bunion hammertoe surgery on my right foot on August 2, 2004. First of all I want all of you to know this board has been EXTREMELY helpful with the many, many questions I've had about RSD. THANK YOU!!

So far I've had three lumbar sympathetic blocks and I've been on six different medications (Neurontin, Nortriptyline, Bextra, Catapres patch, Lidoderm patch, etc.) to control the pain. The side effects from the medications were driving me crazy so I've slowly weaned myself off all of them. I'm currently using a TENS unit almost all the time to help manage the pain. This option was better for me since I didn't want to walk around "in a fog" all the time. The nerve blocks only helped for a couple of days. The Pain Specialist who diagnosed me says the next option for me is a Spinal Cord Stimulator. He's referred me another doctor who he feels is one of the best with this modality of treatment.

Last week I went to a Nerologist in hopes of him being to help me. He said the Pain Specialist is the way to go. He did suggest I get a Bone Scan since it's been six months since my surgery. The Radiologist who read the scan said he didn't see anything on the Bone Scan that would support a diagnosis of RSD. :confused: I saw the scan myself and there are several areas that are darker than other areas of my foot. These spots are the areas in which I'm experiencing the most pain. I've also done research on the Bone Scan that suggests they're only accurate a little over 50% of the time. Is that true?

Wednesday I will see the new Pain Specialist and see what he suggests the next step should be.

Thank you again for all your encouragement and support! :bouncing:

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