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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index

Hope you are feeling a bit better now Cindy. Regarding ice - definitely don't put ice directly on your skin, but there are some RSD patients like myself that are extremely sensitive to heat, a hand resting on my knee feels like a hot poker, and I do use cold packs wrapped in a towel to take down the inflamation and cool off the knee. It has not made it worse - in fact it has gotten much better. I use a cool pool and flotation belt in deep water and exercise and stretch my legs. I have built up slowly and it has definitely helped reduce my pain. Right after I was diagnosed I had local nerve block right in leg which made things worse and it spread to my arms and face. However after getting on Neurontin and Clonazepam I forced myself to go to the pool and work through the pain slowly. Got my circulation going and now I am much, much better and can do a full workout. Hopefully once you get out of casts etc. you will be able to do physio and I highly recommend no impact water therapy. Ask your paint management doc about it. You may indeed be an RSD patient that should keep away from extreme cold but cool is not the same as ice. Listen to your body.

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