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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Kim,
No I haven't tried any of them yet. I am afraid they won't see me, as I have seen a Mayo MD who has made a diagnosis. "Left had pain, most likely related to carpal tunnel syndrome or remodeling." If they are in Mayo system, my records are now on computer which they would have access.
I am pretty much afraid of going to Mayo at all.
I do have another appt with my primary doctor this coming week,who has switched me from Neurontin to Amitriptyline. I have been reading about RSD on Reflex Sympathetic Dystrophy Syndrome Association Website. rsd.org
Yes, and a lot of what is written could fit me, especially last spring before desensitization and occupational therapy. I seem to be in a holding pattern right now. Not getting better, but not really getting worse. I am really active and have been using my hand a lot since spring. Not because I want to but because I have to. Farm chores. My deal and I am trying to remain optimistic, so I can keep doing it, but the last two weeks, I was really depressed.
I wear a nitrile glove. Have one on now. I still don't know if I have RSD or neuropathy, but yes, PMD would help in either case. Just afraid of being told I have to live with it, like the last one said.
[QUOTE=Jeanne M]Kim,
No I haven't tried any of them yet. I am afraid they won't see me, as I have seen a Mayo MD who has made a diagnosis. "Left had pain, most likely related to carpal tunnel syndrome or remodeling." If they are in Mayo system, my records are now on computer which they would have access.
I am pretty much afraid of going to Mayo at all. [COLOR=Blue]I think your fear is taking control of you. Don't see the Doc at the Mayo, go to another one and don't take your medical records nor should you sign a release. Go in Fresh. Start over on a Clean Slate. Tell the new Doc.." I have had two DX, one Doc says yea and another says no, so I am coming to an experienced Doc in RSD, for treatment of whatever it is. Here is another thing, I don't trust a Neurologist to DX RSD (I don't care if he came from the University of God. I pray I never need a Neuro), you need to see Anesethologist. The List I gave you, were Docs that treat RSD, so they know what is going on. The nice thing about the PMD's is that they are understanding, they have committed their lives to Pain Management, pretty cool huh? so they are there to help you, so you don't have to DEAL with it alone[/COLOR]
I do have another appt with my primary doctor this coming week,who has switched me from Neurontin to Amitriptyline. [COLOR=Blue]I was on both these drugs and they did not Help at all. Has your Doc tried Cymbalta? I was on it but it did not work either, they say it helps for neuropathic pain[/COLOR] I have been reading about RSD on Reflex Sympathetic Dystrophy Syndrome Association Website. rsd.org
Yes, and a lot of what is written could fit me, especially last spring before desensitization and occupational therapy. I seem to be in a holding pattern right now. Not getting better, but not really getting worse. [COLOR=Blue]I go through these stages often, without rhyme or reason. Not worse not better, just RSD. Since June, I feel like I am going down hill fast[/COLOR]I am really active and have been using my hand a lot since spring. Not because I want to but because I have to. Farm chores. My deal and I am trying to remain optimistic, so I can keep doing it, but the last two weeks, I was really depressed.
I wear a nitrile glove. Have one on now. I still don't know if I have RSD or neuropathy, but yes, PMD would help in either case. Just afraid of being told I have to live with it, like the last one said.[COLOR=Blue]I totally understand the statement "you have to deal with it" It is ok to hear that and even though it will make you mad, think of it as being one doctor closer to help. One thing I have learned about Docs, is that they are human and they are not Angels nor God. Everytime I go to the Doc I set myself up for disaapointment, so when the Doc says "I can help you, I am in a better place instead of getting my hopes up.[/COLOR][/QUOTE][COLOR=Blue]You may have both RSD and Neuropathy...I do. I have RSD in the left Upper extremity and Trigrminal and Occipital Neuralgia. Hum! Makes me think a little more about RSD and all the friends he (I give RSD male gender, I don't think I need to explain LMAO) is making in my body. Please don't give up, you must keep on- keeping on.

Always,
Kim[/COLOR]





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