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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Aloha Claire & All :wave: I would say being a woman that you should stick to your intuition. I wish I would have follwed that advice and it would of saved me alot of meeting the Mr. Wrongs.Whenever that intuition talks to you you should follow it. Call youbrave--no I call you desperate. We've all been there at some point where we would try anything ( except maybe drink squirrell pee as someone else suggested LOL) :D but I would listen to that inner voice. You still have SOME swelling as opposed to a FEEL LIKE I"M 180 years old when I wake up. Boy that sure beats the record of the pain scale on a 1 to 10 how do you feel :jester: Maybe they should ask us RSD'rs how old do we feel today?? I never felt that old, but I used to ask my kids if they got the # of the mack truck that was driving and ran me off the road!'

How old are you, may I ask? And the swelling is it like pre-menstrual or it's all in your foot? If it;'s all in your feet, which isn't t he origin of the RSD I'd be real leary of retrying it again. Try some herbal supplements or something that didn't nearly put you back 4 squares from where you were before you started again. I truly emphasize with what you are going through, but being desperate, vs beeing logical, I think you're confused.

My girlfriend who has been taking treatments on my STS machine, tells me that she paid to see a Rheumaoid Therapist, because there is only one on this island Of Maui, and he is not HMSA approved but Kaiser. She went in, and this guy told her, that she has rheumetoid arthritis vs RSD, which makes sense cause she doesn't have the same symptoms as us. Same shoulder/neck injury, but different symptoms. He also told her, cause she mentioned me with RSD, that when you see a pain magt. dr., you should ask if he is a member of the American Pain Mgt. Association. Supposedily, these dr's have the most curent knowledge of RSD and other chronic pain that we see here. He also told her for me, that I should take Cymbalta for the nerve pain. Desperate for that magic pill I researched it, it sounds alot like lot he Neurontin, Lyrica etc. It's an anti- depressant used for treating once again, diabetic neuropathy, and shingles. It's side effets are more similar to NeROTTON than Lyrica :eek: Lily is the manufacturer, and there have been alot of suicides over this and the side effects are horrible.
I just pray Claire that you, realize when to throw in the towel. I'd rather be a functioning person than a vegetable. No one said that YOU HAVE TO BE THE HERO! I just worry for you, and I know that time tells all. Just keep us all posted DAILY. Then your support group groupies can guide you through this. Pinky swear?? ;)

PS Hubbard that was a great encouraging post! :bouncing: I think that the NERoTTEN is making you tired, and that OXY is the wrong drug for us.
Anytime that the drug companies gives us the bad drugs for free, like OXY and NeROTTEN, yet we have to pay for the good ones like MSCottin which is a more safer drug, but extended pain relief vs. short term relief. I take Graviola and Noni juice for herbal supplements, and in one month I have been taking less narcotics. In fact I could do away with my break thorugh pain, except the quick acting perc I need in the :) morning. Baby steps though. We all have to remember baby steps. Look how long it took us to get where we are vs where we wanna be. My computer is freezing up on me so it's time to say good night, or Aloha same thing Take Care ALOHA SKOOZE :angel:





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