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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi Beth and welcome to the boards! :wave:
I'm so sorry to hear about your husband. RSD/CRPS is a horrible thing that I wouldn't even wish on my worse enemy. It sounds like he could have had some form of RSD before the knee replacement. RSD occurs when the path of normal healing doesn't work. I'm sure the surgery aggrevated it and the shooting pains and numbness are definite signs of RSD> I'm sorry to hear that the blocks didn't work. The blocks should be done when RSD/CRPS is first suspected, so hopefully it will go into remission. I didn't have luck with my blocks either, but it had been 2 years before wc approved them. :rolleyes: Your husband should immediately go apply for social security disability. You qualify from when you apply, but there is a 6 month period before you can receive it. So he needs to apply asap to start the clock ticking.
To answer your question to how fast RSD get worse or better, I would say everybody is different. Mine started before they even did my neck surgery. My hands would turn red, white and blue, severe temp. changes, fixed claw position, severe muscle spasams, lack of sleep because of pain, etc. After my surgery, which they hoped would fix it, it started right back up when I started PT for the 4th time, and got worse if there is a worse. As far as meds go I think he shoud see a new pain specialist. Others have good luck with just lyrica and elavil, but stay away from neurontin. It took me several doctors before I found the right doctor and by that time I was pretty much bed ridden and so thin. I'm on 180 mg of MSCotin a day (extended release morphine), 5 percocets for breakthrough pain, 3 soma, 3 xanax, and remeron to sleep with. I used to be on more pills. It's finding the right combo of meds that work so you are not in so much pain, and can have some kinda life. :)
I also would seek an attorney' advice. They are necessary evils, but you never know when someone might try to pull the rug out from under you. I'm glad that he is going to see a neurologist. A triple phase bone test may or maynot prove that he has RSD. It's a 50/50 chance. But an MRI or cat scan may be a valuable test because they can see soft tissue damage. Make sure he never puts ice on the limb either. He needs to move the limb as best as tolerated, maybe in water to take the weight off. But if he is in so much pain, it will be hard for him to do anything. Maybe you should right down how is pain feels, and when it the pain gets worse and if anything helps the pain, and take these questions into the neurologist. I'm not sure if you live in a small town or big city, but I would defintly seek another pain doctor's opinion even if you have to travel an hour.
Your friend was right so go down to social security and get him signed up for disability asap. I hope this helps. You got a great support team here. I hope some others can offer some good advice as well. Have your husband read through some of these posts(or you read them to him), and see if this seems to give you both an idea of what you are up against. Good luck and my prayers are with you. Aloha Skooze :)





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