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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Dear TX:

I have the SCS box implanted for pain in my lower back down through both legs and into my feet. I had the Intrathecal Infusion Pump put in last October to help distribute morphine throughout my body because my RSD had become systemic in all limbs along with various attacks on my organs.

Prior to becoming systemic, the SCS box was very helpful to me. I was able to continue working and my pain was minimized. However, the infusion pump can be setup so that bolis injections (extra-morphine) can be sent through the bloodstream at certain times during the day when it is most difficult for you.

You have to look at your situation so that you make the best decision for yourself. This board is full of information about all kinds of topics. Good Luck with your decision.

Marie :angel:
To follow-up on questions regarding driving and getting into a pool. txmomof3 is correct about turning off your SCS box prior to driving. I too have the SCS implant and after the normal 12 week recovery, I was able to get into my pool and lay on a raft. Prior to my injury, we used to play volleyball in the pool all of the time. However, now that is no longer possible.

Marie :angel:

[B][U]My background on RSD:[/U][/B]
Aug 2000 - Left foot surgery
Sept 2000 - Right foot surgery
Nov 2000 - Started experiencing a number of RSD symptoms
Nov 2000 - Jan 2001, I saw a total of 6 doctors including specialist at Cleveland Clinic
Jan 2001 - Diagnosed with RSD
Feb 2001 - Nov 2001 went through a number of spinal blocks & physical therapy
March 2002 - Spinal Cord Stimulator implant
March 2004 - Spinal Cord Stimulator replaced due to bad lead & battery problems
Summer of 2004 - RSD began to spread, hands were numb & arms were burning. Legs would give out and experienced continence
Sept 2004 - Spinal Cord Stimulator removed so that MRI could be done, Dr. suspicious about possible Syrinx in spinal cord. Syrinx was found in the neck area. Dr's agreed that I was permanently disabled and would not be able to return to work.
Oct 2004 - Went to 3 different Neurologist who all agreed that syrinx was not the cause of my problems.
Dec 2004 - Saw a hand specialist regarding the pain/numbness that I had only to be told that I did not have RSD (who did this guy think he was after everything I have been through, telling me such a thing). He recommended that I see a Rheumatoidologist .
Jan 2005 - Rheumatoidologist diagnosed me with systemic RSD in which all extremities are affected. I also started having RSD attacks on my internal organs. (These are so very, very painful) The only thing I can do is take oral morphine and rock through the pain episode until it is gone. Normally lasts for 8hrs or so but one time I had an episode that lasted for 3 days.
I also had my Spinal Cord Stimulator box re-implanted on 1/12/05.
Feb 05 - July 05 - continued trying various medications to help calm down my pain (none of them worked, except for large doses of morphine)
I trialed tested the morphine (Intrathecal Infusion) pump and it seemed to help me.
Oct 6, 2005 - I had the Intrathecal Infusion Pump implanted and began therapy to adjust the amount of medication that I would need.
Nov 2005 - Granted Social Security Disability due to permanently disable.

Not only do I suffer from systemic RSD but also severe depression as a result from this horrible disease.

Note: I use an electric scooter in the house to get around and I have a wheelchair in our car for when we go out.

[COLOR=Blue]God Bless all of my brothers & sisters who suffer each day from RSD.[/COLOR]





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