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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi Ginger--Hang in there girl. Yes the first few years are the hardest. It is an emotional rollar coaster with lots of dr's. The ones that make you mad are the one's that tell you there is nothing wrong with, I can't help you, or it's all in your head! :dizzy: and I hate pills too, I used to be a small bottle of tylenol a year if that. It will and does get better. With our RSD brains, it's a good idea to on a seperate not***** to write down things you want to ask your doc before seeing them. If it is alot, I put A's by the first important ones, than B's, etc. That way when you see them, you at least get the most important ?'s answered. If there are way too many ask for an extended visit. That way they aren't looking at their watch. :)
You might want to consider a chill pill. If you used to be very active and hyper like me, it can be just as effective as anti depressant. I take 3 a day, sometimes too if I'm too stressed out, becuase stress makes the pain worse.
I think too from whqat other's have suggested is that you try the Lyrica. I have personally not tried it, but did the Neurontin. :nono: That was a bad drug. It seems to work wonders for people here who have that burning, stabbing, knifelike pain. I too was sensitve to anything or one touching me. I wore layers, and soft baggy cotten or flannel.

A far as a hobby goes, do you like crossword or jigsaw puzzles? Reading, there is so many choices of mystery, drama, romance it is good for the mind, and once you find an author you like, the library can recommend others. Try Sue Grafton. She is Private Eye and her book start with the alphabet. Ais for Allabi , B is for Burglary. She is up to S now. But start at the beginning. I tell you you can't put them down, and it get'syour mind off of your pain and your situation, plus you will build a vocabulary. I always wanted to learn a foreign language, and thought about getting the tapes, in case I fell asleep. LOL! Subliminal is good for retention so they say. Videos are great too, because you can watch and pause them, and move around. It's important to not be in position for too long. Do they have support groups in yor area for people with chronic pain? I started one here, ms type A, and met so many neat people all in the same boat. That kept me busy.
Hope this helps, and chin up girl. Keep us posted and let us know what happens. Acceptance is half the battle. Aloha Skooze
Hi Ginger :wave:
You blob of fire-- you crack me up. I am so happy that you are off that NO MO'ROTTEN, and on Lyrica. I personally have never tried Lyrica, but I see my doctor tommorrow, and she's been on vacation, so I'm sure she will be a quick in and out. I posted an earlier thread, is Lyrica better than Neurontin. .. and it's quite lengthy. Youmight want to read that. It's several pages long.

Did you quit the NO'MOROTTEN cold turkey?? I hear that the Lyrica is so much better. Mo bettah you might say. Maybe you'll come out of that fog. But the NeROTTEN hangover will stick around. Don't mean to get you down, I'd have loved to sue that Drug company. I've been babying myself lately. Eating and sleeping. My last day of work is Saturday night from 6 to9:30. It is so dead in there, whoever I work with will take turns sleeping in the dressing room with the booth!!! :D That's on my agenda. My feet are both on fire :blob_fire but they feel ice cold. They are still swollen from that 2 month job. What acrazy girl I was thinking I could take a job. I think I just wanted to get away from HOME. But now that my daughter's boyfriend has been relocated, it is not as bad. I only have 1 teenager sprouting on my couch instead of 2. I know my food bill went down, as did the electric, etc. I'm even gonna take the the turd to small claims court over the money he owes me. I'm half Irish and all RSD, and I love the new Dixie Chicks song, I'm mad as h***, fThat is my new cell phone ringer. :cool:

I pray Ginger that you get some relief from the the Lyrica. You really and truly deserve it. Think positive, take a bubble bath, and Shake it off. Guaranteed their won't be any mosiquitos in your tub. :D Sounds like you don't need anymore bites. Now I'm getting silly. Have a better tomorrow. P.S. Can't wait to you change your favorite icon to this :bouncing: Aloha Skooze





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