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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi all,
I just finished a different post, was scanning the other threads and WOW, this really caught my eye! I have had RSD in my right arm and hand since July of 2000 and just had my tonsills taken out last month. After reading all the surgeries you all have been through, my tonsillectomy seems so minor. I was very scared about complications, like the surgery would "spark" the RSD to spread more. Luckily everything came out fine. I may be in the wrong thread, but I am interested to know the different ways ya'll deal with your RSD. I rarely come across anyone that has it. My RSD showed up along with Dystonia 2 weeks after my Carpal Tunnel surgery and spread all the way up to my shoulder. I also I was on so many pain meds, it was unbelievable. I was being prescribed 80mg Oxycontin 3 times a day. I am now on permanant disability. I gutted through the pain and detoxed off of all the pain meds for a while. I couldn't bear the pain anymore and now take Norco when I need to. Some poeple criticize me for taking pain meds and then I feel like I'm being a baby but the pain is just so unbearable I don't know what to do. I am so limited in what I can do physically, it is so frustrating. The pain just wears me down after a while. All of your cases seem so much worse than mine, I am so sorry. I hate to complain when mine isn't as wide-spread through my body than others. I just get so frustrated-at the end of my rope, you know?-, and am curious as to what others do to just get by day-to-day. Thanks for listening!





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