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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


I've never had my hands clench up on me but my arms and hands and legs used to spasm and twitch really bad. I told my pm and I was put on baclofen. It is awesome! It cuts way back on spasms and the twitching as well so even when it does happen it's not bad at all and instead of happening a few times a day it happens a couple of times a month. Ask your doc about it because it surely is a lifesaver!

I read your scs thread and I feel I need to make one comment about something you said. RSD can spread anywhere, not just to your limbs. It doesn't mean it will happen to you but I wanted you to know RSD isn't confined to just the limbs. It can be anywhere in your body even the internal organs. From what I've learned in all my research they say that they percentage of those who have internal RSD are low. I take any statistics with a grain of salt really because no one has any hard statistics on how many people just in the US have RSD or how it has spread and affected them. The few surveys I've seen or comments on numbers put it at anywhere from 100,000 people to 7 million people with RSD in the US. That's a big range but I'm willing to bet it's a few million myself.

I hope you can fix the problems with your scs though and wish you good luck.

Gentle Hugs,
Karen
[QUOTE=GalenaFaolan;2719691]I've never had my hands clench up on me but my arms and hands and legs used to spasm and twitch really bad. I told my pm and I was put on baclofen. It is awesome! It cuts way back on spasms and the twitching as well so even when it does happen it's not bad at all and instead of happening a few times a day it happens a couple of times a month. Ask your doc about it because it surely is a lifesaver!

I read your scs thread and I feel I need to make one comment about something you said. RSD can spread anywhere, not just to your limbs. It doesn't mean it will happen to you but I wanted you to know RSD isn't confined to just the limbs. It can be anywhere in your body even the internal organs. From what I've learned in all my research they say that they percentage of those who have internal RSD are low. I take any statistics with a grain of salt really because no one has any hard statistics on how many people just in the US have RSD or how it has spread and affected them. The few surveys I've seen or comments on numbers put it at anywhere from 100,000 people to 7 million people with RSD in the US. That's a big range but I'm willing to bet it's a few million myself.

I hope you can fix the problems with your scs though and wish you good luck.

Gentle Hugs,
Karen[/QUOTE]
Yes, I have RSD and my hand cramps up really bad. Have to pull my fingers out. It looks like my hand is crippled. jacar





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