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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hand spasms/cramps
Dec 31, 2006
Hey everyone. for the people who have rsd in there hands. do any of you get hand spams or cramps. my hand will start twitching and then without notice just kind of clinch up. making a really tight fist. it takes awhile for it to stop. usually someone will have to massage my hand and fingers trying to get the muscles and tendons to relax. it hardly works but its worth a shot. because the only other way is to grab my fingers and force them to straighten. which as you can imagine puts me into severe severe pain. does anyone else have this problem and it so what do you do about it?
Amber
I've never had my hands clench up on me but my arms and hands and legs used to spasm and twitch really bad. I told my pm and I was put on baclofen. It is awesome! It cuts way back on spasms and the twitching as well so even when it does happen it's not bad at all and instead of happening a few times a day it happens a couple of times a month. Ask your doc about it because it surely is a lifesaver!

I read your scs thread and I feel I need to make one comment about something you said. RSD can spread anywhere, not just to your limbs. It doesn't mean it will happen to you but I wanted you to know RSD isn't confined to just the limbs. It can be anywhere in your body even the internal organs. From what I've learned in all my research they say that they percentage of those who have internal RSD are low. I take any statistics with a grain of salt really because no one has any hard statistics on how many people just in the US have RSD or how it has spread and affected them. The few surveys I've seen or comments on numbers put it at anywhere from 100,000 people to 7 million people with RSD in the US. That's a big range but I'm willing to bet it's a few million myself.

I hope you can fix the problems with your scs though and wish you good luck.

Gentle Hugs,
Karen
Hugs Amber.

It's possible it could be in your back. My test in that first year was, is this pain in another part of my body just going on and on. I waited 2 months and when it was still hurting just like the left leg, I knew it had spread there. It started for me in my left knee/lower leg, going up into the thigh and hip before going into the right foot and shooting up from there. I think it took about a week or maybe just a bit more before I realized that foot and leg was feeling as cold as my left. By 11 months it was in my arms but it was just the pain. It took like a year and a half or so before I saw any color changes or any temp change in my hands. When I asked a friend about it she told me that it can spread without the temp or color changes right away cause it happened to her. Anyway, it's been over 2 months since your surgery and with your back still hurting I would tend to lean toward it might be in your back. Someone I knew who got an SCS last year her back hurt for 2 or 3 weeks after surgery then had to have another surgery because of infection and lead replacement then another 2 or 3 weeks from that but it did stop hurting her. Your surgery site has long since healed so it shouldn't still be hurting. I don't think it's normal at all. From all the problems you're having as well it may be better for you to have it taken out completely. No use in having it if it's not going to help you all and take your pain down. I wish you weren't having to go through this at all. Talk to your doctor and then make the best decision for you now and in the long run. You know what's best, no one else does and don't let anyone talk you into doing what you don't want to do. I'll be thinking of you and waiting to hear how things go.

Hugs

Karen
[QUOTE=GalenaFaolan;2719691]I've never had my hands clench up on me but my arms and hands and legs used to spasm and twitch really bad. I told my pm and I was put on baclofen. It is awesome! It cuts way back on spasms and the twitching as well so even when it does happen it's not bad at all and instead of happening a few times a day it happens a couple of times a month. Ask your doc about it because it surely is a lifesaver!

I read your scs thread and I feel I need to make one comment about something you said. RSD can spread anywhere, not just to your limbs. It doesn't mean it will happen to you but I wanted you to know RSD isn't confined to just the limbs. It can be anywhere in your body even the internal organs. From what I've learned in all my research they say that they percentage of those who have internal RSD are low. I take any statistics with a grain of salt really because no one has any hard statistics on how many people just in the US have RSD or how it has spread and affected them. The few surveys I've seen or comments on numbers put it at anywhere from 100,000 people to 7 million people with RSD in the US. That's a big range but I'm willing to bet it's a few million myself.

I hope you can fix the problems with your scs though and wish you good luck.

Gentle Hugs,
Karen[/QUOTE]
Yes, I have RSD and my hand cramps up really bad. Have to pull my fingers out. It looks like my hand is crippled. jacar
Hi,ihave Rsd In Both My Hands, I Get Spasms Up And Down My Arms.
Sometimes I Cant Grab Things And Other Times My Fingers Lock.
I Cant Do Normal Things Like Hold A Book Toread,wash Dishes,blow Dry My Hair,i Cant Turn My Wrist To Bring Pills To My Mouth.
Cant Lean Or Put Pressure On My Hands.
And Many Other Things Like Typing.
I Will Be Seeing A Psych To Determine If I Am Nuts .i No Im Depressed Because I Have Been Home For 3months And I Do Nothing All Day
Andto Top It Off I Think My Co Workers Must Think Im A Leaper Because Not One Of Them Has Called To See If Im Dead Or Alive. Is This Common Practice In The Workplace?? To Abandon Your Friends??





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