It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


[COLOR="Blue"]Ben...Here is Jay's post about her first ketemine treatment. I hope this will help you out. Take care, Dee[/COLOR]

Sorry I need to be brief - but I am oh so happy

Hope all of you get a chance

50mg total of ketamine

10mg fast - it was very mind altering but not scary

Then the other 40mg running at 10 per each hour

It lasted for 4+ hours

I had NO side effects

They let me rest but always made sure I could be alert

First my hands stopped burning (2 &Ĺ years of burning)

Then my hands and wrist stopped hurting - I started smiling

After a few hours the inside of my RSD leg started to feel hollow - like an empty tree trunk - it hard to describe

Then I felt like the outside of my leg was a burning thick knee sock - the kind I wore as a girl

I spoke to several people at the hospital doctors, etc. who had never seen a ketamine infusion, after my doctor asked my permission - I thought the more that know the better

Remember I suffer severe lower back pain, neck pain, etc. for 16+ years since I was hit by a car as a pedestrian - that pain went down to a 4/5

I start with my back and leg at a SOLID 9

After maybe three hours my burning sock dropped to the same 4/5 that my back was at

I could not stop smiling

I stayed less than an hour in recovery since I did so well

I am now 40 hours since the infusion - my leg and back have moved to a solid 5 but thatís okay I am still smiling

My wonderful doctor went over with me that this is not a cure and many people, most people the pain or a percentage does return which I was fully aware and am prepared to deal with

I want to remind everyone NOTHING, and I had all the treatments including the pump, has EVER decreased my leg pain before

Maybe 6 mg of Dilaudid via IV in the ER helped for a half hour of pain but I never got near a 4 or 5

I am so excited, I am sleepy but not groggy, I sit happily playing with my hands since the mobility has greatly improved.

I do not want to sleep because I want to stay awake happy, but I do fall asleep into a cozy restful sleep not the horrible drug induced pain ridden sleep I usually have

My happiness feels like a slice of heaven, may you all feel it someday soon. May we all get it and may they find a way to make it last

For those of you who know me my concussion headache did not go away but when I came home and took my normal meds my headache reduced for the very first time.

The most happiest feeling I have is that when the pain is reduced I am NOT depressed, hopeless, blue, etc. The pain monster does that to us.

I feel like an onion and several layers of pain were peeled off and I found me again - the happy me - the old me. It has done me wonders to learn that because as most of you know who live at a 9 you begin to question your sanity

Happiness to all.

And to think all this started because I was willing to do a drug study to do something of value with my useless life. I wanted to help others and I was given the greatest gift all, even if the pain returns tomorrow.

Most sincerely and thank you all for helping me get to this moment in my life, jay





All times are GMT -7. The time now is 02:01 PM.





© 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!