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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hey Donna -- Just wanted to check in and see how you are doing? did the cath help any? Mine is still in, it will be in for another 4-6 weeks. The doc can leave it in up to 3 months. I've gotten used to carrying the bag around, and my husband is learning how to change the medicine bag so that I can start PT.

The pain actually broke through this week, so I am getting an increase as to how much is going in. All the medications I take on top of this make me tired too....they are switching me from Lyrica to Topomax and I'm hoping that wont make me sleep.....the Zoloft I take already does a good job of that!
[QUOTE=djmcmullen;2905539]Hey Donna -- Just wanted to check in and see how you are doing? did the cath help any? Mine is still in, it will be in for another 4-6 weeks. The doc can leave it in up to 3 months. I've gotten used to carrying the bag around, and my husband is learning how to change the medicine bag so that I can start PT.

The pain actually broke through this week, so I am getting an increase as to how much is going in. All the medications I take on top of this make me tired too....they are switching me from Lyrica to Topomax and I'm hoping that wont make me sleep.....the Zoloft I take already does a good job of that![/QUOTE]

Hey!!! I am doing so much better. It was really a big difference in the beginning, but I am starting to feel the pain again. It has been out for a couple of weeks now and I can tell it is better than it was, but still taking ultram for pain and using tens unit. Pain Doc said he would probably put Epi cath back in sometime in may or june. yay. But I can tell a difference from the level of pain that I had before compared to how I feel now. So I am willing to have the Epi cath placed as many times as I have to in order to get the pain relief it brings. I don't know how you are doing it for as long as you are! My hat is off to you for sure. It was an adjustment carrying that bag around all the time, and learning to take an abbreviated shower and shampoo. That was the worst. I hope you are doing well, and good luck with the Topomax. I am on Elavil at night along with Robaxin for muscle spasms, so everything must be finished before I take those two or it's lights out for me. Take care and I hope you are getting some relief! :wave:
Hey yall,
I see doctors are precribing us RSD people with drugs that treat other things...like lyrica. Isnt RSD big enough to have our own meds????
I cant wait until im on one that helps with the pain..........hard living with constant burning, stinging, throbing pain and only taking Lyrica and percocet.
Well yall.........i have to try and lay down...........everything is on fire at this time.....talk to yall later today,
CAT





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