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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index

I am new here, and have been wanting to talk with other people with this condition for a very long time now. The past few years for me, have not been great. I am a 21 year old female, relatively healthy aside from this.

In my senior year of high school, during gym class, we were playing Volley Ball. My friend was beside me, and he accidentally pushed me hard, I ended up losing my balance, and stepped on the right side of my left foot (When it bent, and the left side was flat against the floor) with my right foot, and heard a horrible crunching noise. I immediately blacked out and saw little stars in front of my eyes. My father came to the school, my friend carried me out to the car and we headed to the Emergency Room.

When I went to the hospital, they took x-rays of my foot, and told me it was fine. I had no broken bones, I just twisted it. But the next day, I was still not able to put any weight on it at all, and stayed home the rest of the week from school. On Friday I had an appointment with an Orthopedist, and as soon as he saw my foot, he told me I needed x-rays right away. When he got them back, he told me I had broken 3 metatarsals (2nd, 3rd and 4th) and he put on a cast.

I had this cast on for only two weeks and he decided to take it off, even though I was in a lot of pain. He gave me a walking cast, however I wasn't able to walk for another 3 weeks, and even then I had to wear the walking cast for months including using my crutches.

I underwent Physical Therapy for a while, but it was not helping.. so I went to Pain Management.

The doctors there told me I would probably feel better if I would get some nerve blocks, and told me I may have developed CRPS/RSD. I was incredibly scared at the time to imagine getting anything done like having a giant needle stuck into my spine.. so I went on with life on my own. I dealt with my everyday pain with no painkillers, and I would just grin and bear it.

Three years later, I got myself a full-time job, working at a Home Depot, and loved every minute of it. I loved my coworkers, I loved what I did, and I even loved my customers. I was on my feet all day, and while I still experienced pain daily, I lived with it.. It was tolerable, but it was there.

One day, as I was putting a customer's merchandise in a bag for them, my co-worker came up next to me and stomped down as hard as she possibly could onto my left bad foot. She also was wearing a pair of Timberland boots, while I had on a cheap pair of sneakers. For the second time in my life, I blacked out and saw stars in front of my eyes. I began crying, but almost laughing at the same time, and I'm not sure why. She had no idea I had a bad foot. I hobbled into my manager's office and sat in the chair as I watched my foot swell incredibly and watch a part of it turn all kinds of black and blue and purple too!

I called my father to let him know what happened, and that I should be okay... but everyone at work was telling me that this looked like a serious injury, and I should go to the hospital. I didn't want to leave work, as I said I really enjoyed it.. and hated hospitals. But my father came, and as soon as he saw my foot he took me straight to the emergency room.

No broken bones this time. Nerve damage, according to my doctor's.

Now the problem is that I went on Worker's Comp. They paid me 6 months, and paid for all of my medications, my physical therapy, everything. Then after 6 months, they told me to go see one of THEIR doctors, who of course saw me for 4 minutes and told Worker's Comp that I was fine.

So they ordered more tests. MRI's, X-rays, an EMG test.. of course nothing showed or proved that I had RSD, as my doctors diagnosed me. Because... in many cases, there isn't a sure way to prove it.

Now I'm going to trial with Workers Comp because their lawyers and mine could not make a settlement. It has been 16 months since I was injured. For 10 months now, for no fault of my own, I have been unable to walk without use of a cane, I cannot go out with my friends and do the things 21 years should do, I can not work or pay any of my bills, and more importantly: I am in constant, chronic pain.

At night, I can't sleep well. I can't get my foot in a position where it doesn't rub against the sheets or blanket and feel like it is on fire. When I walk on it, it feels like everything in my foot is just about to snap and fall apart. It's always cold, ice cold to the touch. I can not bring it up or down more than 2 inches, nor side to side.. I cannot move it, it just drags along with me!

It just really bothers me, that these lawyers and their doctors can go into a room with you for less than 5 minutes and tell you that you're perfectly fine. My own doctors took months until they each, separately and without knowledge of the others diagnosis, came to the conclusion of me having RSD.

The physical therapy I was getting was really starting to help a lot too. I went from a 9/10 in pain, to an 8/10. That may not seem like a lot of a difference, but you all know that any relief in pain is good. My doctor began prescribing me Vicodin at first, and it did not help in the least. Then I was prescribed Tylenol 3's for a while, which gave me a bit of relief, but not much. So now I receive 90 Tylenol 4's a month, which help a great deal. They don't help if I need to go out and about.. My sisters wedding a few months ago was by far the most painful moment I've had in a long time. Just the walk down the aisle, without use of my cane, was unbelievably painful.

I want to go to Pain Management, but since I am 21, am not working, and Workers Comp refuses to pay for any treatment, I can not. I have no insurance, and my father can not afford this. I've had other problems, a swollen lymph node that's required countless doctors appointments, CAT scans and blood tests... We are running low on money.

It's all just so stressful... I didn't ask for this to happen. I am not faking it. I would not sit in bed for 16 months and not be social with my friends, not go walking more than 20 feet without having to stop, not go out with the use of a cane if I was not seriously injured. I hope that the insurance company is following me around with cameras, I really do. I am not scared at all, for I have nothing to hide. They will see me as I truly am, an innocent person who was assaulted by my own co-worker, and my life has now dramatically changed for the worse.

The only good thing though, is that I am strong and brave now. I am ready to go to court. I am willing to let them hear my side of the story. I would be honored to have them follow me around. I have nothing to hide :)

I just want to hear if anyone else has had trouble's with Workers Comp or Disability recognizing their RSD also.

I can not get Social Security because I'm only 21, I haven't worked long enough yet... And I am trying to get Medicare or Medicaid, whichever one it is.. because I really need insurance. My medications alone cost an insane amount of money.

Sorry for the long post, but this is my first... and I wanted to share my story with people who may understand :)


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