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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi Cat,

I'm so sorry to hear all of the problems you are going through. My brother deals with W/C for a different type of injury.

As for your current state, I can totally sympathize with you because I was the exact same way (and I still am) when my RSD first started in Dec. 2000. The only difference between us is that I had Endoscopic Plantar Fasciitis surgery on my left foot and then 2 weeks later on my right foot. While the surgeon was in there, he hit a few nerves which was the beginning of my nightmare with RSD. I could not get my heal down on my left foot and I still can't to this day due to all of the pain. The RSD started in both feet and spread up both legs, then into my lower back.

After going through a large list of drugs, 15 spinal blocks, & physical therapy, In March 2002, I opt to have a Spinal Cord Stimulator implanted in my lower back to help with my pain. I had to have the SCS box replaced in March 2004due to a bad lead and low battery. Then in July 2004, my arms & hands began to swell really bad and my legs were giving out. After several tests, they found a syrinx in my spinal cord but did not feel that it was causing my problems or all of my pain. By the end of the year, after I was sent to a number of doctors, I knew in my heart what was wrong but I needed to see my Pain Care Specialist to confirm it. I went to see him in January of 2005 and he confirmed my worse nightmare. My RSD had become systemic in which it had spread through-out my body. Over the next few months, it began to attack my organs, in which I have horrible spasms.

I had to retire from my job in Sept. 2004 because I just could not do it anymore. When my RSD became systemic, I had to have stronger pain medication, so I had a morphine pump implanted in my stomach. It is time released and I go back to the doctors every 5-6 weeks to have the unit refilled. I use a scooter to get around in my house and a wheelchair when my husband or kids take me out.

I'm not trying to scare you about your situation because each of our stories are different. However, I encourage you to find another doctor if you are not comfortable with your current one. I'm not sure if WC makes you go to the doctor of their choice but if that is so, I would request through them a second, third, or fourth opinion if that is possible. I wish you the very best of luck in finding relief ASAP! I will keep you in my prayers.

Marie :angel:





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