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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index

Hi All -

No trying to break the trend going here, but my RSD spread from my left lower leg (initial injury) to my entire left leg - right leg - hips - lower to mid back - arms and shoulders - and finally is in my jaw and left side of my head. All of this in two and a half years. The SCS trial I had was horrendous. I think that was the point when it really hit me in the back. I went through 9 nerve blocks, a double lumbar sympathectomy, SCS and finally now I have an IT pump. I am also on a list for the Ketamine coma treatment. I am still debating doing this. I could not hardly imagine the pain being any worse, but I some research showed the RSD coming back 10 fold.

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