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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


I've never posted here before, but here goes nothing. Of course, in my first post I'm going to be all controversial and get people mad at me. But that seems to be my way.

RSD and RND are exactly the same thing. Anybody who says otherwise is either misinformed or is adhering to to an idea that has no scientific validity. RND is a term commonly used by a certain set of pediatric doctors who believe in a certain set of practices to treat whatever you want to call this stupid disease.

These doctors treat whatever-they-call-it with intensive physical therapy, and sometimes the very basic combination of Neurontin and Elavil. And they often get very good results with this treatment. Because although their theories are, in my opinion, ridiculous, the treatment is very basic, conservative and works in a great deal of pediatric patients.

Why is this a pediatric thing? Where did these theories come from? It comes from the fact that children often recover more readily from RSD, without invasive procedures. However, that doesn't make it a different disease. It's to be expected. Neuroplasticity (the ability of the nervous system to rerout and "fix" itself) lasts well into the 20s. Adults don't have that advantage, and more steps must be taken to retrain the nervous system.

My problem with all of this? I don't want to name names of doctors who have definitely helped some people, but some of them have published articles and whatnot solely blaming psychological factors for the development of RSD (or RND).

That doesn't make RND an illegitimate term for this disease. Really, I think it's a better name than CRPS. RND, standing for reflex neurovascular dystrophy, at least takes into account that there are vascular problems seen in RSD or RND. The most distressing part of this disease may be pain, but there are other things going on here.

And as for the lack of allodynia, you may just be lucky. Or maybe you don't have RSD. Whatever it is, I hope that you get relief.

Sorry for writing a novel. This is (obviously) something that annoys me!

-Betsy, first-time poster...

[QUOTE=gjeepn1557;2989507]I have just been going thought the message boards and I saw a woman say that she had RND. What is the differnce between RSD and RND? And can an Adult get RND?
I don't have the sensitive skin. Just the pain. Nerve pain.
Maybe the Doc was wrong. Maybe I don't have RSD but RND. Could someone tell me the difference?
I do have the shooting nerve pain that brings me to my knees( that hurts in itself) I have had 3 surgeries on my knee and am waiting for the "new knee". but the doc won't do it because he said I have RSD. but it is not sensitive to touch where it is painful.
Maybe I'm looking for light at the end of that dang tunnel!
Thanks
Gail[/QUOTE]





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