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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi,
Sorry to hear about your friend. This disease is awful at it's best, at it's worst it's undescribable.

I have had it for 13 years and have been through many, many meds.For me, each med that worked seemed to have a end point. My biggest regret is stopping the Methadone and changing to Morphine. I changed because I was hospitalized 4 times for various reasons and had to deal with horrible attitudes of staff that thought I was a Heroin addict. Too many war stories to tell here.

I recently came off Morphine and went on the Lyrica. I'm on 300mg now. Had to decrease from 450mg due to side effects becoming intolerable. Now the pain is up...........so I'm going to try going back up again. I've also been on Cymbalta 120mg for 3 years.

Certian meds have stayed the same for many years.......Baclofen for the muscle spasms, Lasix for the swelling.

I have arthritis (RSD or age.......no ones sure) so for the joint pain I'm om Mobic 15mg, Limberel 500mg.

I also bruise.........my arms & legs are horrible. After 3 hemotologists........no answer..........as usual. "Probably RSD"

Sorry this is so long. I hope it helps.

Judie





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