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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


michelle,
I'm having alot of pain again, up most of night with it, my face, jaw, neck, r arm, hand, down r side of back into hip and my r leg. I've been taking Lyrica since beginning of this year, its been titrated down over past week, i'm gonna ask if i should put it up again, i'm confused as i feel more pain again yet i still had pain when it was higher dose, i've also been taking amitriptylene the same amount of time, i do feel foggy as you put it on a morning, that is why i try to refrain from taking drugs which make me dopey on a morning as i need to be conversant on a morning to see to my son as my hubbie is at work 6.30 am. It's a no win situation, i feel torn do i take the meds to help me but live in a world of feeling doped up or do i try to psycologically beet this pain yet feel alert. The latter i think wont work for me as i find i am tetchy, argumentative, fiery, you know what i mean as the pain takes over and i take my frustration out on my loved ones. Ive had rsd for about 3 years although it feels like a lifetime, i really feel its taking over me in more ways than one, i simply am not the same person i used to be, i'm gonna ring the doc's and ask if i should titrate the lyrica back up, i don't go until next monday. I hear what you say, my hubbie is gonna go with me, he is a good listener and what goes in stays in, my head is in bits right now so i think it would be for the best, i am lucky i know to have him he is very loving and caring but i cant help but feel he doesnt deserve this, i know we dont deserve this it turns your life upside down and i try to remain optimistic but its so so hard. Michelle i really dont know how you have been able to tolerate this condition so many years, i suppose i need a kick up the rear, a reality check or something, i sometimes wonder if i am imagining this, but like me you know what it feels like the pain and all, but when you cant see it its harder to explain just what your going through. I remember one of your threads saying at least its not life threatening like the big C or having an arm or leg chopped off but quality of life is so valuable and you just cant put a price on that. I'm trying to jeer myself along today, i've got to pull myself up i have never been so low and i am scared i am getting depressed and i always told myself i would never get that way, so here goes i'm determined to have a better day today. How is your son, did he go into hospital, and have you got a date for your procedure? Hospitals, that word has become a regular in this house, i bet your the same, sorry not going down that road, my hubbie is off work for a couple of weeks in August so we're trying to sort something out for a holiday, i really need some sun badly, perhaps this weather here isnt helping me, my son finishes school in a couple of weeks for the summer term, six weeks he's off so i'll be pulling my hair out, it'll be mum can i have this can we do that, but it might keep my mind occupied. Please don't be offended if i dont come on here as much in the next few weeks but no doubt my son will dominate the computer. I promise i'll try to keep my chin up, hope your having a better day, my thoughts are with you.
tracex
michelle,
thanks for your kind words and words of wisdom. I hope your having a good day. The numb pain i have in my jaw and neck has always been there from the start, i always assumed it was from the nerve damage in my neck, the rest has built up progressively over time. I tried contacting the doc's about my medication but i will have to wait til monday when i see them, they are unavailable to speak to right now (yeh right!). You are right about the heat treatment, i find hot showers do relieve me until i get out again! I use wheat bags also, only i could do with a whole body wheat bag to cover all the areas from head to toe, the weather's still miserable, a bit of sun and showers but its very cool about 17 celcius. I bet its lovely and hot over there int it. You are right in what you say, i think my body is topsy turvy at the moment, not knowing what's going on with the meds etc a bit confused. I have asked if they are going to do any physio on me for the herniations and they said no, they are just trying to eliminate possible causes at the moment, i understand that but it is a very loborious process, they want to see if my leg symptomology is a result of my lower back problem or if its all steming from my neck, i just have to be patient and stick to it. It seams they are trying more conservative methods before going through more invasive regiems. It feels a bit like i'm going in circles back to square one, not really getting anywhere, but they did say i would be going up and down to hospital regularly for a long long time as this is a complex case, with complex symptoms and complex treatments, i'm beginning to realise just what they meant. The fact that this was said to me on my first visit to see pm spec suggests he must have a good understanding of this condition, i hope anyway, i've gotta stick in there, grin and bare it and hope one day something possitive will emerge out of this. On a different note, i wish you luck with your law suit, that must be so stressful for you, but i trust your little friend the journal will help, you cant possibly remember everything that has been happening to you, i know them lawyers are so fiesty, they throw everything at you and really twist your mind, they really do try your patience, but i have every faith in you, you are a very strong and determined lady, so don't let the buggers drag you down. Keep me informed on that would you, you deserve something for all your suffering. Are you claiming on the other persons insurance as a result of your accident, it was a car accident right, i forget, forgive me my mind like yours is blank at times. I wish your son well and hope all goes well for him. Oh by the way i had a reply from a lady here in the Uk she has been through the same as me so i'm hoping to compare notes with her, like you over there its good to exchange notes, advise etc especially when dealing with the system on the same soil. Please please look after yourself, i will speak soon, hope all goes well with everything. Best wishes, ta ta for now tracex





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