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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi, this is Sherri...unfortunately, the pain showed up last night--some in my right wrist (the broken one) but more in my left hand, wrist, all the way up my arm and even in the back of my shoulder. Have you heard of this? Is my body "referring" the pain elsewhere? Thank you so much for the advice about the blocks before and after surgery. (Would I now need to get them in both arms?) I hope that the doc I see on Tuesday for the second opinion will know about RSD and will refer me to someone who can diagnose it before we do the surgery.
[QUOTE=Shellygod66;3138210]Michelle,
From what I was told. repetitive use of ice freezes the mylenlin. I think thats the tissues that surround the large nerve fibers. It causes something like freezer damage to the myelin nerves. Then what happens is you develope sensory loss and pain do to permanent damage to the large nerve fibers. This is was aggravates the RSD. I also heard yo can have failure to nerve blocks because of the damage that can be done.. Then what happens.. Since you have failure to the blocks.. You told that you dont have RSD ..
I know this might sound confushing.. Iam sure if you look it up on the internet, you might undertand it better....
Michelle[/QUOTE]


Ice does do damage if you use it a lot and especially if you keep using it with RSD. BUT.....there's always a but.......after only 6 months with RSD the nerve endings and other things in there are permanently damaged never to be repaired as well.

Failure to respond to a nerve block is because the pain is Sympathetically Independent Pain or SIP at that point. That is why someone who ends up getting a block too late may not get any relief at all. Those who may get some relief, even a short time, from a block still has SMP or Sympathetically Maintained Pain.

Now damage to the nerve endings can be done by getting an exessive amount of blocks. Most doctors have realized this and it's why a lot of them will now only give 4-6 in a series and refuse to do any more. It's only for the safety and well-being of the patient.

Most doctors also have learned this much, well most of the time, and if you fail to get relief from the block will still diagnose you with RSD because they understand your pain has gone SIP. The docs who rely on a block to say whether you have RSD or not......aren't very educated on RSD and it'd be best to find another doc asap, IMO. It's the same with a bone scan. Just because it comes back negative, doesn't mean you don't have RSD. It just means that the RSD hasn't affected your bone density yet.

Hugs,

Karen
[QUOTE=SherriSLC;3138182]Hi, this is Sherri...unfortunately, the pain showed up last night--some in my right wrist (the broken one) but more in my left hand, wrist, all the way up my arm and even in the back of my shoulder. Have you heard of this? Is my body "referring" the pain elsewhere? Thank you so much for the advice about the blocks before and after surgery. (Would I now need to get them in both arms?) I hope that the doc I see on Tuesday for the second opinion will know about RSD and will refer me to someone who can diagnose it before we do the surgery.[/QUOTE]

Go on a search engine and do a search for rsd and blocks before surgery. This will give you stuff to read up about it. I'm not entirely sure about the whole thing myself seeing as I've never faced surgery with RSD. I'm not sure how they would do it, but IMO, I'd say they need to cover both the arms so it doesn't spread.

I hope as well you will see someone who knows about this. If you find any useful articles on the reputable sites, don't be afraid to print them out to show the doctor. You have to be the advocate for your own care.

It could be "referred pain". I'm soooooooo hoping that it's nothing much, a sort of hope for the best thing here. *Gentle Hugs* Wait to see the doc and see what's said before anything else.

I'll be thinking of you and wait to hear the results of the doc appt. I go see my doc tomorrow too. :D

Hugs and calm hugs,

Karen





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