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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index

I had truly hoped I would not develop this nor did I think I had. Until I read the doctors report sent to the WC IMO hearing. I have had 2 cervical spine surgeries and trying for a third which has been denied 3 times not for necessity but because my pain was not documented on ONE form being on the right side. WC said the MRI states I should have right side pain with the posterior herniation, and moderate foraminal nerve compression being where it is. You see most of my pain is left sided. I do have pain on the right side actually a lot of numbness. But WC only chose to look at one paragraph. It was noted that I have CRPS and that was well documented. I wish someone would have told me about that. And that is what brings me here.

I have read up on it a lot but still am unsure what to expect. For about 2 years I have felt a burning pain over my left arm from the neck to the hand. It is most of the time and I take Lyrica for it and it seems to help. I contributed it to having severe spinal cord compression for 18 months. I also have hand, wrist, arm, finger and neck pain. I have shoulder spasms and cramping either side. I have tricep pain both arms (doc noted radicular pain both arms) and one of the weirdest feeling is in my chest/lung area. My primary doctor even send me for a chest ct scan. It feels like I have dirt in my lungs. I cough to get it up but there is nothing there and the ct came back clean. Sometimes I have an awful taste in my mouth. Kinda like I got with strep thoat. I noticed my finger nails are so brittle they break every time they grow at all and have ridges and spots like I was calcium deficiant which I am not. Does all this sound like CPRS?

If this truly is this disease what can I expect? I am not sure if it is getting worse other then my lung deal. I am afraid of this, I am 44 with a 2yr old. I am still working and have good days and bad. I am trying to decide to file for a medical retirement which is not a bad deal financially howeverI have no idea how good the city will honor my medical.

Any assistance would be helpful.
Have to agree, it does sound very much like crps. I like you started 3 years ago with prolapse in cervical spine, surgery 18mths later and then developed strange feelings in other parts, ie burning legs, feet, swellings to r hand and lower legs, numbness, burning, tingling in fact the list goes on. I too take lyrica it does help to take the edge off pain in my arms but does nothing to help my lower back and leg probs. I do have further pathology to my lumber spine which has only been noticed since Jan this year following another MRI. It isnt the pleasantist of diseases to have but you have to work with it. Its difficult to comprehend but there are many treatments out there, although it seams there is no cure but pain management is a good option. You say you have a 2 year old, i really feel for you and complement you as you also work, it's very difficult when there are sibblings involved, i too have an 11 year old, but they adjust and grow up knowing how you are, you have to be strong for them remember. Keep reading on this site, i'm sure you will get strong feed back, i did and it helped.
Good luck, tkb

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