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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hey there Jax!
:wave:
I too am one of those that abhorr anything invasive. I was very lucky early on and met people that were like all of you. The advice given about SCS & sympathectomies was overwhelmingly negative. There were a few that had good early results and after a year were still fine. The odds were not in my favor. I tried a couple of experiments but they were all medications. I won't go into a long story, but I swear some of my spreads were from the numerous blocks they tried.

From what I've read about the ketamine infusions it does sound like the up & comer. God....what I'd do for 5 hours of straight sleep! Did they take you off your other meds?? I want off the Lyrica but do not have any other options & I do not want to go back to the opioids. Please.....tell us more!

Lots of gentle hugs

Judie (swollen in Florida :bouncing: "
Wow..this is awesome! I hope the Ketamine becomes more "in use" by other physicians. I do not know if Medicare will cover it. I'm going to ask. The Lyrica is very annoying. I now own 3 pair of the same sneakers in different widths! from normal to wide to double wide.......thats exactly what they look like....a double wide trailer :) I also have BIG feet.

My goal has become to get off of all this stuff. I agree,Jax, all these drugs do more harm. Take one...take 2 for side effects.........and on and on..........

Excuse.........I've been in the negative mode & though I try it keeps rearing it's ugly head!

Hugs

Judie





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