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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi everyone. As some of you know, my husband has RSD in his right hand dx 3/06 after injury in 2/06. He has had 4 stellate ganglion blocks as well as epidural's, spinal cord stimulator and narcotic pain medicine.The last Stellate Ganglion Block was in May of this year. Since mid November he has had almost constant head pain, same side of body. For the last week his neck has been very sore and stiff. He describes the pain as irritating when things like his shirt touch his neck.Could this be from the stellate ganglion blocks damaging whatever it is the blocks can damage. Nerves? Nerve fibers? Or could this be just a spread of RSD? If it's spreading, how do you get that diagnosed? Is it symptom based? Why would a spread skip certain areas of the body like the rest of his arm? Thanks in advance for any thoughts or opinions.
[QUOTE=martra1025;3351517]Hi everyone. As some of you know, my husband has RSD in his right hand dx 3/06 after injury in 2/06. He has had 4 stellate ganglion blocks as well as epidural's, spinal cord stimulator and narcotic pain medicine.The last Stellate Ganglion Block was in May of this year. Since mid November he has had almost constant head pain, same side of body. For the last week his neck has been very sore and stiff. He describes the pain as irritating when things like his shirt touch his neck.Could this be from the stellate ganglion blocks damaging whatever it is the blocks can damage. Nerves? Nerve fibers? Or could this be just a spread of RSD? If it's spreading, how do you get that diagnosed? Is it symptom based? Why would a spread skip certain areas of the body like the rest of his arm? Thanks in advance for any thoughts or opinions.[/QUOTE]

The block certainly wouldn't be having an effect on what he's feeling now. The last was in May and it's just been since last month he has the pain in his head/neck area. Blocks rarely ever do any kind of damage and if it's not a good doc doing one you'll know right away something went wrong.

RSD can jump all over. It doesn't have to be a progressive spread marching up one area then over to another. It can jump from a foot to a hand on the opposite side of the body or the same side. RSD, unfortunately, has a mind of its own. It sounds to me like it's spreading. Especially since he is having touch sensitivity on his neck. Any diagnosis of spread can only be officially made by a doctor and yes it is symptom based. Some docs don't believe it can spread at all much less jump around so I hope his doctor isn't one of them. It just makes things harder. I knew mine had spread when I started hurting somewhere else and the pain didn't stop in the new spot.

I'm so sorry he's having these issues. Call the doc or bring this up at the next appt.

Hugs,

Karen
Martra,
Iam so sorry your hubby is going through this.. It is sooo frustrating. I truly understand... Rsd Affects the sympathetic nervous system. which origingate in the spinal cord and run parallel to the spinal cord on both sides.
I know Karen said that the block probably didn't affect his RSD.. Iam not sure I support her with that...
I had two blocks.. My first didn't help at all.. My second didn't help either.. After I had my second thats when my RSD spread even more.. When getting a block you are dealing with the nerves.. Whos to say that the block did not aggravate the nerves running down the spine.. Iam not a dr but with RSD anything is possible..
RSD does have a mind of its own.. Their are differant patterns of spreading.
Contiguouis spread, this occurs in almost all patients and involves the gradual enlargement of the affected area.
Independent spread, signs and symptoms appear at distant sites not adjacent to the initial site of the injury. This pattern occurs in up to 70% of pts with RSD.
Mirror image spread, signs and symptoms appear in the same area on the opposite limb. This pattern occurs in up to 15 % of pts..
I hope this helps some.. Iam sorry your dr didn't hear what your hubby was saying.. PM drs are only there to help deal with the pain.. Hopefully when you see Dr S, he will be able to answer some of your questions.. Theres not much they can do to avoid the spreading..
Is it possible that he may have some cervical injuries?
Michelle





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