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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Re: Cold Sweats
Apr 8, 2008
[FONT="Century Gothic"][SIZE="3"][COLOR="SlateGray"][CENTER]RSD affects your Limbic system, which affects your body's temperature control system. I always have to ask my kids if they’re hot, cold, or comfy in the house cause I never can tell. I also sweat like crazy. After I shower, I have to sit in front of a fan for 20 minutes to cool off my body temp before I do my hair and minimal makeup or I'll be sweating the whole time which makes it impossible to get my hair and makeup done cause I’ll have sweat dripping in my eyes and down the back of my neck and forehead the whole time, which keeps my hair wet. I go grocery shopping and literally drip sweat just standing in line waiting to pay... I have to carry a “sweat rag” with me everywhere - it's so freaking embarrassing. I’ve also had times where I’ve been literally shivering under 5 or 6 blankets, absolutely freezing my patooty off. Now, I live under an electric blanket all winter long. It keeps out the damp and chill, and makes the harsher TN winters a teensy bit more bearable for me… I miss those mile FL winters!!

Serenity... not knowing what you are taking… have you asked your doc for something for your spasms, or are you on something for them already? Klonopin worked great on mine, or did until I moved to East TN 3 years after getting RSD (with excellent documentation from the 3 years in Florida!). East TN is the worst place for someone with a chronic pain condition to live/move to because it's the nation's #1 prescription drug abuse area and the doc's around here are extremely tight with meds cause they are closely watched by the authorities because of the abuse, and so they changed just about every med I was on - except the neurontin at first - then they put me on Lyrica instead, a big weight gainer. My new Pain doc took me off the Klonopin and put me on Baclofin for spasms, and while it helped some, the bad twitching came back. I know it's bad for me (especially for people with RSD), but I do smoke, and I used to twitch and jerk so bad (off the Klonopin), that my cig would literally fly out of my hand almost 1/2 way across the room sometimes. I also gained a lot of weight from the Baclofin as well as the Lyrica... finally, after 18 months, my doc finally stopped the Baclofin and put me back on Klonopin and all is well again with my spasms (no more flying smokes!!). I also asked to go off the Lyrica, so they started me on Topomax in it’s place (it’s known to help lose weight), and I've lost 27 pounds in just under 4 months without changing my diet at all. Are you on anything for nerve pain like neurontin, topamax, lyrica, elevil, etc... ? It sounds like a good muscle relaxer could be beneficial to you as well.

I hope you all feel better,
Cathy[/CENTER][/COLOR][/SIZE][/FONT]





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