It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index

Not good news
Jun 13, 2008
Hi everyone,
Saw my doc this past Tuesday -- He went over all the treatments and offered me the sympathetic nerve block and I declined. I talked to him about disability too cuz I've been strugglin at my 3 hour job cuz of all the walking (RSD is in my left foot) -- Since I'm a state employee, we don't get state disability, but we do have 100 days of 1/2 pay -- However, SSD requires being off work for a year so most folks are put on state disability for a year to meet that requirement -- I can't do that, so.....not really sure at this point what I'll do. Today was our last day of work until August -- Yesterday was the last day for the kids (I'm at elementary school, but moving to Middle School next year). I know that most RSDrs don't work, but is there anyone out there working part time like me??? I LOVE this job, and it's good for me to work (I work very well with children) and we need the money so I cannot imagine just upping and quitting for a year and then trying to get SSD -- I know it's a gamble and that's what scares me. My doc says they usually will say "if your legs are bad, then get a sitting job" -- I also have neuropathy in both legs and that's also a painful condition. Anyways, I need to talk with people who have had the sympathetic nerve blocks -- I'm not trusting of ANY doctors except for my RSD doc because the guy that did my foot surgery screwed up and I need more surgery cut can't have it cuz of this darn RSD.
He also offered me narco, narko, norko -- Don't know how to spell it, but I know it's a bit stronger than Vicodin cuz that's what I'm taking now -- I'm doubling up on my Vicodin instead of having to buy the Narco (sp?????) Anyways, -- Anyone on that Narko drug? Do you like it, does it help, does it make you light headed?
And, who has been helped by the sympathetic blocks? I know some are helped, many are not. Also, he explained to me that IF it helps, then we will just continue doing that -- He said that in his research, the patient went 3 months before needing another one but I've read on this site that sometimes it only gives relief like for a day, etc -- Not worth having the procedure. Also, I'm a bit nervous because it's invasive and I surely don't want RSD in my back and that thought scares me to death. Can anyone help with this? I know RSD is the weirdest syndrome in the world cuz no 2 people have the same pain level, the same problems, etc etc. I burn a bit in both feet, but I have zero sensitivity and I'm 9 months with RSD. Someone on this site had said they didn't get sensitivity until 4 years so I know we're all very different except that we all hurt an awful lot.
He also had mentioned the ketamine in-patient thing is an option for some. Oh my gosh, I almost died in shock but my doc is a good RSD specialist that was just telling me all the options out there possible for down the road, if necessary. I didn't ask him if the hospital he's affiliated with does that procedure but wow oh wow -- Being in an induced coma for 5 days???? YEEKS! I thought I read or heard somewhere that the young gal had done it but it only lasted a year -- Her RSD came back -- Is that correct?
Michelle, I know you've written back with some wonderful, kind info and I'm pretty sure you've had RSD for a very long time. I can't remember -- Can you walk on your own? Are you mostly in bed all day? I'm so sorry, I honestly cannot remember. Thought maybe you could help answer all these questions.
I also need a cortisone shot in my right thumb because I've got an unrelated ligament problem and I don't even want to have that because I'm soooo afraid that RSD will go there too because of the needle. Isn't that right?
I know there's tons of questions here, but I would so much appreciated it if someone could answer some if not all of my questions.
Guess that's it for now -- It's a Friday night and my husband and I are gonna watch a DVD so must go for now -- You all take good care, and we'll write soon.
Thanks again for writing.
Rose :angel:

All times are GMT -7. The time now is 07:03 PM.

© 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!