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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


:confused:
sorry this is going to kind long

WOW Michelle
thank you for replying to me,
so you got RSD from your H-disks also?
How are you doing now? talk about wilded this happening to you the same way as me,

I did not get the Dx of RSD till just 4 weeks ago, (I am so new to this)
but I had things going on from the start, I started posting on here
just about my H-Disks and was told by one Dr, that I would needsurgery on my neck
but my Ins Co would not ok it,
then I had spams so bad they thought I was having sezers, and so on

But I kept telling everyone what I was feeling, and I never had H-disks before
so I thought that was norm, but it was not, that is why no one would treat me, from the start, and then my Ins Co would do anything to stop me like not paying my bills and kept telling me that it was FM (I do have but that did not hurt as bad as this) and I kept telling my Ins Co this, I know what FM feels like, I been to Dr to Dr, but then my PM Dr here, when he seen my arm and seen my foor and toes, that is when he said you have RSD
my arm is really red but also has red spots all over it,
what is that? also at one time, if I would just take my hand and feel the R-Side of my neck, it felt like my skin was ripping open,

that burning down my spine and neck, is the same burning I got in my RSD foot and hands, but its more intenst! now and my arm, its a crushing burning feeling, just if I move it a little, and WOW tears!
this would wake me up, crying from it, I got to the point where I could not even get out of bed by myself, and when someone would help me out of bed
OMG the pain!

below is the list of things that happen from the crash,

and I am not to have any pain from all this the IME Dr's
he knew I was in pain, but not from a auto crash!

the H-disks are all I had at frist, and TMJ, then the reat come on about a year later, with a new MRI, from what I understand, RSD can couse a lot of that also,


C4-5 HERNIATED NUCLEUS PULPOSIS AT JUNCTION OF RIGHT ANTEROLATERAL RECESS AND RIGHT NEURAL FORAMEN;
C4-5 NEURAL FORAMINAL NARROWING ON RIGHT SIDE AFFECTING VENTRAL C5 NERVE ROOT;
C5-6 RIGHT SIDED DISC HERNIATION EFFACING THE VENTRAL ASPECT OF THE THECAL SAC ON RIGHT SIDE DISPLACING THE RIGHT SIDE OF THE SPINAL CORD POSTERIORLY;
C5-6 NEURAL FORAMINAL NARROWING ON THE RIGHT;
C5-6 SPINAL STENOSIS;
C6-7 DISC HERNIATION RIGHT SIDED EXTENDING FROM POSTERIOR CENTRAL ASPECT OF DISC INTO RIGHT NEUROAL FORAMEN;
C6-7 EFFACEMENT OF RIGHT SIDE OF THECAL SAC EFFECTING VENTRAL NERVE ROOT RIGHT C7;
AGGRAVATION OF DEGENERATIVE CHANGES MANIFESTED BY DESICCATION AND NARROWING OF DIFFUSE NATURE THROUGHOUT CERVICAL SPINE;
LINEAR HIGH SIGNAL ON T2;
AGGRAVATION OF DEGENERATIVE CHANGES THORACIC SPINE;
AGGRAVATION OF DEGENERATIVE CHANGES LUMBAR SPINE;
LUMBOSACRAL TRANSITIONAL SEGMENT;
ENDPLATE IRREGULARITIES LUMBAR SPINE;
RIGHT MEDIAN NERVE NEUROPATHY RIGHT WRIST;
CARPAL TUNNEL SYNDROME;
NECK PAIN;
PINCH NERVE C4/5 RIGHT
LEFT AND RIGHT SHOULDER PAIN;
BACK PAIN;
HEADACHES
JAW PAIN/TMJ
FRACTURE OF TOOTH #14;
PERRICORONITIS OF TOOTH #16;
NUMBNESS AND TINGLING ACROSS BACK;
DIFFICULTY BENDING;
DIFFICULTY LOOKING AND SIDE TO SIDE;
DIFFICULTY STANDING, DRESSING, DOING HOUSEHOLD CHORES, LIFTING, SLEEPING;
DECREASED CERVICAL LORDOSIS;
DECREASED LUMBAR LORDOSIS;
INCREASED THORACIC KYPHOSIS;
MARKED ATROPHY OF UPPER TRAP, LEVATOR AND SUPRASPINATUS;
TENDER PARASPINALS CERVICAL AND THORACIC SPINE;
NUMBNESS AND TINGLING DOWN BACK AND INTO HEAD;
DECREASED SENSATION RIGHT SIDE OF CERVICAL SPINE, UPPER BACK AND UPPER EXTREMITIES;
DECREASED PECTORAL FLEXIBILITY;
UNABLE TO FEEL UPPER BACK DUE TO LOSS OF SENSATION;
SENSATION LOSS INSIDE OF MOUTH;
LIP NUMBNESS;
HEAD TINGLING;
RESTRICTED RANGE OF MOTION CERVICAL SPINE;
STRAIGHTENING OF THE NORMAL CERVICAL LORDOSIS CONSISTENT WITH PARASPINAL SPASM;
THORACOLUMBAR SCOLOSIS;
NUMBNESS AND WEAKNESS BOTH ARMS AND SHOULDERS;
CERVICAL PAIN RADIATING TO BOTH SHOULDERS AND DOWN RIGHT ARM INTO HER THUMB AND DOWN LEFT ARM TO ELBOW;
DIFFUSE NUMBNESS ENTIRE HEAD AND FACE;
CHRONIC PAIN SYMDROME;
BRACHIAL NEURITIS;
RADICULITIS;
DISPLACEMENT OF CERVICAL INTERVERTEBRAL DISC;
THORACIC DISC DEGENENERATION;
THORACIC SPONDYLOSIS;
spinal stenosis LUMBAR
LUMBOSACRAL NEURITIS;
PAIN IN LIMB;
ABNORMALITY OF GAIT;
VISUAL DISTURBANCES;
IDIOPATH AUTONOMIC NEUROPATHY;
CERVICALGIA;
PAIN IN THORACIC SPINE;
myafacle pain (spelling is not right sorry)

there is more like my ANA went up, to a whopping 1:1180 that's right,,,and so did my TSH something to do with my pituitary gland,

I had none of this before my crash, ,,,,had a MRI just before the Crash
and it was ok,, and all my blood work was ok also
now everything is going up,,

No I am not really being treated at this time just my GP Dr and my PM Dr
but they can only do so much due to Medacre and Medacaid will not cover anything that was from my auto,
and my Auto Ins cut me off, last year, after a IME Dr working for then said
I was ok and could go back to work,(the pain and injrys are where not from my autp crash! WOW
also I could not lift my arms, would you want me to pick up your baby, being like this?
Ex Nanny,,,, I was,


this just kills me that,even thou I could not walk from foot drop and swelling and my toes curling under my foot! and pain,
also and I could not open my hand , it was like lock close
and I had no Tone! all on right side,
this is when I could not walk and had nursing and PT and OT in my home,
and then Ins Co pulled the plug on everything!

I do not get the feeling of the flu, but its pain like nouthing I felt in my life

thank you for answering me, and hope to hear from you again
pain free hugs
KB
PS I am going to go see a RSD Dr July 1, and I am hoping we can get by the Ins part, and hope he will treat me,





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