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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Sorry to hear your story. Don't give up hope. My RSD specialist (he's a rheumatologist, but also RSD doc) has me on Lyrica and Cymbalta everyday -- First tried neurontin but didn't work. The Cymbalta is being used to help with nerve pain, along with Lyrica for nerve pain. Have gained alot of weight. Seeing a rheumatologist would be a good idea, along with asking to have a 3 phase bone scan -- Some say its not definitive, but my left foot lit up like a Christmas tree so it was a very conclusive test. Being blue or red in color doesn't usually happen right away so if the docs wait til we're blue or red, it's too late to try and get a head start on this disease to try and treat it. As you might find out, quick diagnosis is really important with RSD. Getting onto medication is important as well. Neurontin and Lyrica are used much of the time, along with Cymbalta. You should be able to find plenty of info on RSD on the web so that should help your doctor. I had had surgery and didn't get better -- I got worse pain very quickly.
Hope this helps you and hope you have a better day tomorrow -
Deb





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