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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Thank you for the information about the ice...I thought it made me feel worse! I have RSD allover but more significant in my wrists/hands/arms...pain get HORRIBLE even with pain meds. Some days so unbearable. My swelling is quite significant too. My C-Reactive protein is very high and even on Prednisone it didn't go down, my Rheumy. was perplexed.

I also used to get tons of sores on my feet/hands..not so much now. I get uticaria and other weird changes in skins color and temp changes. I have so many symptoms it would take hours to write;).

I am going to ask my pain doc about the nerve blocks...do Nero's do that? I think my hands NEED it REALLY badly since no meds work at all take it! How exactly is it done? I know when I get needles put in me I get like a severe flare. It happened really bad when I had my EMG. My EMG came out normal. Is that common? I think my nerves are hypersentive. Like when I have anything done my reactions are severe. I had drilling done on alot of teeth. Went back more than 5 times and I still cannot eat on the teeth because of shooting nerve pain. Is this common. Plus my dentist said he has "never seen someone need so much novacaine" and my "body sucked it right up."

I have had x-rays, MRI'S and other things done...not sure if I had a bone scan though. I had 2 stress fractures in my left foot/ankle and never injured myself??? I went to 2 ER'S and NEVER got an x-ray, was walking on it like that for 1 month, felt like my bones were exploding. They thought it was just my arthritis and gave me pain meds which didn't work. FINALLY I got an MRI and they found it. There was also some atrophy and other issues in my muscles/tendons. Have some osteo in spine and just tons of other joint, muscle, bone issues. My vitamin D was VERY low. I am on high doses and I think it is helping my cramping. I also have VERY low...half of the lowest normal range. Dis you have this? Is this related to RSD? Not sure why my doc. isn't addressing it.

I actually was doing physical therapy, ordered by my ortho, and was instructed to stop because it was making my symptoms worse? If you don't mind me asking...how many mg's are you on of pain meds? I am on 75mgs a day of oyxcodone but I think I need 1 more dose a day (15mg) because I wake in pain about 2-4 am. Is that alot? Or normal? Without it I wouldn't even be able to function. There are still alot of things I cannot do but I am functioning.

I am going to post again with other questions but I can't type anymore. THANKS AGAIN!!!

-Bella





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