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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hello newly diagnosed,
Please give it a try. Like others have said, we're all very different with how we react to 1 med or another so what works for one, might not work for the other. I was diagnosed in Sep of 07 and began with steroids in very high doses, then neurontin. It increased up to 3600 mg daily at which point I had to change meds because it no longer helped me with my burning feet. I had surgery on my left foot (my plantar plate was ruptured and needed repair) but it had a bad outcome. I wasn't able to do medical malpractice. I'm now on Cymbalta 120 mg daily, and Lyrica 650 mg daily. If I have to walk alot, I can hurt pretty badly so I take an occasional Vicodin. I'm able to continue my job of working 3 hours a day, but holy cow -- Sometimes it's very very hard and sometimes I just want to go onto SSD but I'm really afraid of being denied because many RSD'rs get denied. So, I'm working as long as I can because my husband and I have 2 daughters and we need the $$$$$. We live in Southern California and it's pretty expensive. I'm hopeful that my pain level never worsens. I'm fortunate because I have an RSD doctor who is a rheumatologist but did RSD research for many many years so he's familiar with it. My foot surgery was in late July, then I went up to UCLA in August, and had a few tests, continued having bad pain, then UCLA ordered the 3 phase bone scan and then came the bummer news. It was on a Friday afternoon and they called at 3:30 to tell me I had RSD. Lately, I have really been peeved with my foot surgeon because it's my opinion (and some of my docs opinions) that I wouldn't have RSD if he would have done it properly. I would do anything to get rid of this crappy stuff but it's my reality now. I haven't had good days for the past few, so I guess I'm on the pity pot. Please forgive, but I know someone out there will understand because everyone seems very understanding and stuff --
Gotta run, it's late. I'm hopeful you're able to make a decision about your medication and treatment. We're all here to help you and to listen to you, whatever the issue.
Deb





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