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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hello,
Welcome to this Board. I was diagnosed in September of 07 and I have found people on this board to be very helpful and very kind. I was on 3600 mg of Neurontin, along with 60 mg of Cymbalta but the neurontin wasn't helping me much so the doc switched me to Lyrica. Right now I take 650 of Lyrica, and 120 of Cymbalta and I'm struggling to keep my 3 hour a day job at a Middle School, maintain our home and 2 kids. One is deaf/special needs and she requires quite a bit of help so I'm trying hard. I haven't had any blocks and I'm pretty scared to get them since it's the spinal area. My doctor is saying RSD and it's in both my feet but it was first to make its home in my left foot after a surgery with a bad outcome (I'm left with a scar right on the bottom of my foot where all the weight goes so it's horrible. I had a ruptured plantar plate that needed repaired and it's my belief system that the doctor hadn't ever done that type of surgery before. I should have gone to an orthopedic surgeon but my primary doctor referred me to a podiatrist so that's who did my surgery). A neurologist also did some testing that found neuropathy in both my legs but that's kinda on the back burner cuz it's the RSD that's most painful. Right now, I have Vicodin and take it at night. I'm in San Diego County and I've got an RSD specialist that I've been seeing since diagnosed by UCLA, after having a 3-phase bone scan, continued pain after surgery that got worse instead of better.
I'm so sorry to hear that you're hurting so badly. RSD is sooo very weird because everyone reacts differently to the meds, to the blocks, and to everything else. What works for 1 might not work for another.
Your wedding will be beautiful, no matter what. Hang onto that thought. You're in love, you're young and a man loves you. Are you able to get some support through him in regards to your RSD/CRPS? Having someone to lean on is important with this disease that we've got.
I wish you less pain in the coming weeks, and continue to let us know how you're doing. Everybody here cares.
Deb





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