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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


I've had nerve ending heal in my face from an auto accident i was yrs ago.. I now have RSD (not in my face), but I can tell you.. They both feel the same when it comes to the jolt electrical feeling.. Kind of like sparklers going off.. it comes out of no where..
I agree with Karen.. You need to get an EMG to rule out nerve entrapment. Thats one of the first test they did for me..
I was just curious, What type of shot did they give you today.. Before I was dx with RSD they were treating me for herniated dics which I do have. and THey give me cortizone shots right in my cervical spine.. I would go home.. and hrs later and my pain level would be ten times higher.. Here to find out that I had rsd and the shots were flaring me up.. I am just wondering if thats whats going on with you...
Do you get any other symptoms other then just pain?
Feel better
Michelle
You're welcome! :-) Yes they had surgery to release the nerve and precautions were taken as if they were operating on an rsd patient, just in case. Once it was clear that all the symptoms had gone then that was the surest sign it wasn't rsd to begin with! :D

The emg doesn't actually hurt all that much. From the stories I've read over the years, it seems the ones of us who have touch sensitivity find it the most painful. I had one done about a year after the rsd started. Back then I only had sensitivity to air not touch. Besides my muscles being sore and a slight increase in pain for a couple of days, I had no trouble at all. He tested me on my lower back and down both legs to my ankles. At the end of it all I really did feel like a pincushion! LMAO I won't say it was the most comfortable thing I've ever had done but it wasn't something that made me lay there and cry either. I had been dreading it so much because like you, I had been told how horrific it was and how much it would hurt. I'm soooo glad it didn't turn out that way!

That is true....if there's or was a stretch or tear it takes quite some time to heal up. That may be part of your problem and as hard as it'll be, only time will tell if some of the pain you feel might be due to something like that.

I'm having some good days lately for which I am soo grateful! I'm working on my family tree and that takes so much time and LOTS of typing! LOL I don't have time for lots of pain, especially in my arms. If my legs hurt I can deal with it cause I ain't typing with my feet! ROFL

Hugs,

Karen
just wondering if you have ever had the lumbar sympathetic block done? this would be one way to tell what is coming from possible RSD(sympathetically generated pain) and what could possibly be from injury. it would block the SNS so anything you felt while the block was there could be from a mechanical structural issue. this was my case,or is my case with my knee. while i do mst definitely have RSD in there,i also have had to have two surgeries done on it becasue or damage to certain structures and a huge bakers cyst that had to be removed(i also have a ton of wear and tear crap from firefighting for fourteen years with alot of time on my knees). i recently went thrut wo symp blocks and the difference in where my pain was really suprised me. just taking away that burning aspect and the hypersensitivity away REALLY showed how much pain i am having from the inner side of my knee from the side of the knee cap on over to midline? this would just be an option to try and block the RSD pain and see what is actually left behind that would not get blocked,ya know what i mean?

does this area specifically generate any level of heat for you there at all? there are a couple of different types of conditions that will only show up in the load bearing areas like the foot/ankle and the knee area. it would not be RSD but something called a charcots joint. this is one thing my neurosurgeron thought my actual RSD was just becasue it was very inflammed at one time and generating a ton of heat an swelling. this can also be mistaken for RSD becasue alot of the symptoms are the same. just some stuff i thought i would throw out there for ya. but i do think just trying that symp block would be a good idea as it would block one big area of your pain so you could feel the stuff that is not being sympathetically generated.

just the fact that this one specific area has such direct pain could indicate an injury and not actually be RSD. this is how my knee is. that one particular spot on the side of my knee,well that pain is a bit different than the rest of my RSD affected areas becasue the source of that pain is not coming from the same exact source as my RSD,so there are some differences there. have they done an MRI on your foot at all?

if you have not yet done this(the symp block) you need to,or if you have and could describe what took place while that block was active it would help. if you are generating any heat at all,look up what charcots joint is and how it presents. the symptoms of this and RSD can be very similar. anytime there is affectation with RSD like symptoms in any load bearing joint,it just really needs to be ruled out before any real RSD dx should be made. they are just that close in symptomology. i do hope they can figure this out for you soon. please keep us posted. good luck,Marcia
[QUOTE=feelbad;3758596]just wondering if you have ever had the lumbar sympathetic block done? this would be one way to tell what is coming from possible RSD(sympathetically generated pain) and what could possibly be from injury. it would block the SNS so anything you felt while the block was there could be from a mechanical structural issue. this was my case,or is my case with my knee. while i do mst definitely have RSD in there,i also have had to have two surgeries done on it becasue or damage to certain structures and a huge bakers cyst that had to be removed(i also have a ton of wear and tear crap from firefighting for fourteen years with alot of time on my knees). i recently went thrut wo symp blocks and the difference in where my pain was really suprised me. just taking away that burning aspect and the hypersensitivity away REALLY showed how much pain i am having from the inner side of my knee from the side of the knee cap on over to midline? this would just be an option to try and block the RSD pain and see what is actually left behind that would not get blocked,ya know what i mean?

does this area specifically generate any level of heat for you there at all? there are a couple of different types of conditions that will only show up in the load bearing areas like the foot/ankle and the knee area. it would not be RSD but something called a charcots joint. this is one thing my neurosurgeron thought my actual RSD was just becasue it was very inflammed at one time and generating a ton of heat an swelling. this can also be mistaken for RSD becasue alot of the symptoms are the same. just some stuff i thought i would throw out there for ya. but i do think just trying that symp block would be a good idea as it would block one big area of your pain so you could feel the stuff that is not being sympathetically generated.

just the fact that this one specific area has such direct pain could indicate an injury and not actually be RSD. this is how my knee is. that one particular spot on the side of my knee,well that pain is a bit different than the rest of my RSD affected areas becasue the source of that pain is not coming from the same exact source as my RSD,so there are some differences there. have they done an MRI on your foot at all?

if you have not yet done this(the symp block) you need to,or if you have and could describe what took place while that block was active it would help. if you are generating any heat at all,look up what charcots joint is and how it presents. the symptoms of this and RSD can be very similar. anytime there is affectation with RSD like symptoms in any load bearing joint,it just really needs to be ruled out before any real RSD dx should be made. they are just that close in symptomology. i do hope they can figure this out for you soon. please keep us posted. good luck,Marcia[/QUOTE]


Hi Feelbad,
I have had two sympathetic nerve blocks a couple of months ago..they did provide some relief for maybe a few hours..it was hard to tell if all areas of the ankle were relieved or only a portion...my leg did warm up though and that was a good thing..i wish the sympathetic nerve blocks could provide longer relief..I have heard that some people have have weeks or months of relief. I had an injection into the sinus tarsi area of my ankle and that gave me some relief..but when I walk on my foot the whole thinks starts up again..it is all so confusing...
I will look up charcots joint and see if any of the symptoms apply to my situation...
I hope you have found some relief with your knee after all those years of fire-fighting!!! Thanks, Feelbad....I hope youhave a good week..





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