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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


The more I learn the angrier I get. Why me? What did I do that was so bad?

Right now we are fighting to find the right med's that will help me pull this thing under control. The biggest problem that I have right now is that most days I can hardly walk. I am lucky in that because this is a work related injury, I am covered by worker's compensation. With how much pain I am in all the time it is very hard just to get through normal house work. What used to take me half an hour is now taking me upwards of three or four hours.

I am currently on about 200 mg of Demerol a day just to try and control the pain, but unfortunently that is only working to control the pain caused by all the other damage done to my ankle. It is not really helping with the CRPS pain.

One of the things that I miss the most, besides being able to live a normal life and go to work every day, is sleep. I don't think I have had a good nights sleep in the last 17 months. But, I am thankful that I know what the problem is and that I know what the next steps have to be.

Has anyone ever had some of the damaged nerves removed from the affected area to help with the problem? My ortho has said that this may be an option but I am sceptical as to if this would really work and if it is such a good idea. I had a nerve cut in my left knee and I no longer have feeling in that area. My concern is that there could be more problems from removing the nerves then I have right now.
I am lucky in one way, I am not being forced back to work right now. I have pretty much been told that until further notice I am being put on long term disability through WC. We know that the CRPS has been moving through my leg. I have had knee surgery on both knees to correct other problems and my right knee has been bugging me again and upon looking at it my ortho realized that it was being affected too.

It is hard and fusterating. I have been reading any and all information that I can find online dealing with CRPS/RSD. And I know that I have a long road to recovery. One of the big things that I have come to realize is that I am in a hard place. The longer it goes undiagnosed, the harder it becomes to control. And I know tha 17 months is a very long time in the scope of things. I am just hoping that can get on the right combonation of drugs to get it under control so that I can deal with the mechanical problems.

I don't know what is the worst, the pain or the fusteration that I know that there is little that I can do about it right now. I keep going day after day and it just does not seem to get any better. Most days it is a struggle just to get out of bed and try and get my house work done. I know that physio is supposed to help, but I have been pulled out of that because it was making matters worse. At least my husband is understanding and helping me get out of the house every day.





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