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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


My thoughts are with you, and like Karen says, you are not alone...
Yes, A lot of us have been through the mourning phase.. When I was first started with RSD I thought I was going crazy.. I was the same as you.. No sleep for days on end.. I didn't know what wrong at the time.. All they were doing was treating me for herniated dics , same as you from an auto accident in 2001.. I went for 2 yrs not know what was wrong with me...
Thank god I saw a who knew right away what was wrong with me... He called down to Dr Schwartzman, ( well known dr for RSD). while I sat in his office and god me started on meds right away..
Don't ever give up.. There is hope and I am living proof... This is my 8th yr into having RSD.. I went from not being able to walk.. having it in all four extremities to going back to work.. I only work four days/week.. only for the fact that I get state insurance and I am only allowed to make so much..
I don't feel perfect.. I do have my bad days.. One being last night... But like Karen said.. learn how to handle it.. I think what did it for me was the lidocaine infusions.. I'll say it again.. I mention this all the time on this board.. I wish all of you could have the chance to get this treatment cause it work wonders.. Even if your drs could even contact Dr Schartzman and talk about it with him..
What type of treatments are they doing for you? What meds are you taking?
I think all pain meds are bandaids.. They do not do what the lidocaine and ketamine seem to do...
So you hang in there.. There is hope.. I don't get me wrong. I always worry about it coming back full force.. But so far, I am ok.. It took almost eight yrs... I always the type to push myself.. A lot of times I paid for it later.. I think with the combination of not working and the lidocaine.. That did the trick... I know I will never be cured.. I know my life has changed in every way.. Physically, mentally.. I am just a different person.. It only made me stronger.. It is what it is.. I can't change it..
I hope one day you are at where I am... It feels so good.. to be able to go out and work and make my own pay check and not depend on everyone else..
Thinking of you,
Michelle
[QUOTE=Michelle94;3794673]My thoughts are with you, and like Karen says, you are not alone...
Yes, A lot of us have been through the mourning phase.. When I was first started with RSD I thought I was going crazy.. I was the same as you.. No sleep for days on end.. I didn't know what wrong at the time.. All they were doing was treating me for herniated dics , same as you from an auto accident in 2001.. I went for 2 yrs not know what was wrong with me...
Thank god I saw a who knew right away what was wrong with me... He called down to Dr Schwartzman, ( well known dr for RSD). while I sat in his office and god me started on meds right away..
Don't ever give up.. There is hope and I am living proof... This is my 8th yr into having RSD.. I went from not being able to walk.. having it in all four extremities to going back to work.. I only work four days/week.. only for the fact that I get state insurance and I am only allowed to make so much..
I don't feel perfect.. I do have my bad days.. One being last night... But like Karen said.. learn how to handle it.. I think what did it for me was the lidocaine infusions.. I'll say it again.. I mention this all the time on this board.. I wish all of you could have the chance to get this treatment cause it work wonders.. Even if your drs could even contact Dr Schartzman and talk about it with him..
What type of treatments are they doing for you? What meds are you taking?
I think all pain meds are bandaids.. They do not do what the lidocaine and ketamine seem to do...
So you hang in there.. There is hope.. I don't get me wrong. I always worry about it coming back full force.. But so far, I am ok.. It took almost eight yrs... I always the type to push myself.. A lot of times I paid for it later.. I think with the combination of not working and the lidocaine.. That did the trick... I know I will never be cured.. I know my life has changed in every way.. Physically, mentally.. I am just a different person.. It only made me stronger.. It is what it is.. I can't change it..
I hope one day you are at where I am... It feels so good.. to be able to go out and work and make my own pay check and not depend on everyone else..
Thinking of you,
Michelle[/QUOTE]

[SIZE="2"]Wow, you are so brave.! I am afraid I have lost my courage. I cannot get a doctor in charge of this, they just don't know much about it, and tell me , it will just go away on it's own, not , or get some physical therapy. I am on a low amount of Nueronton @ 700 mgs. ( 300 am and 400 pm.) not enough for the pain, not that I want to be on a bunch of meds. I've been waking up with terrible leg pains and since, the RSD is in my foot, I cannot " walk it off" and the crutches are getting a little rough to handle.... My husband has been terrific, but the look in his eyes this a.m, when I needed help, and he said, "why do you have to be so whiny? " broke my heart...... He's this great guy and I just wanted to disappear....He was my best friend... I don't blame him, who would want to be around this? I am usually a cheery, chatty person that loves to help others, so this is particularly hard and I can tell you dear wonderful people know. I wish I could show up on your doorsteps and come in with a warm blanket, your favorite movie and a good old friend hug. I really do... I'm new here and as glad as I am to see you , it brings me great sadness to read your stories for they are not stories, they are your lives. To remember we are not RSD and that is just what we have is very difficult... But, we all have names and we love life and maybe with each other and the Good Lord we can really help each other.
Thank you all dear ones for being there, is it ok to cry a little? I am beginning to doubt myself worth... Isn't that terrible for a Christian girl...?
Thank you all for being there...
Mary.[/SIZE]





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