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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


tigerlily11,
I started with the rsd in my right hand.. Well it actually started from herniated dics.. but I didn't start with the RSD symptoms until it hit my right hand. I experienced burning in the palm., minor swelling, color change.. I felt like pin were in my finger tips.. In about one month in went to the left hand.. same symptoms.. The burning was horrible.. I use to work at a drs office and in between pts I would hold a frozen water bottle to stop the burning.. Not knowing that cold is the worst for RSD.. My palm of my hands looked deep purple and red.. Looked like I had a glove on..
Slowly it started in my feet well knees down.. I had a weird sensation.. electrical shock feeling.. very sensitive to my legs, but not if you touch them only if I would drop something on my foot etc.. In two yrs the pain just went through my body turning into a flu like feeling.. deep bone pain down my thighs.. My face would burn.. It comes and goes.. I wouldn't sleep at night.. I felt the erge to move around all the time.. Come to find out that, that was muscle spasms. I still get that... Usually I feel most of it the minute I sit down.. I would walk for hrs cause I was afraid to sit down... Then my feet started swelling only the bottoms, color change burning.. I couldn't even touch the floor.. You can tell when it spreads.. You get the electrical shocks, just a weird feeling I cannot explain...
I want you all to know.. I am here for all of you... I know ita a long road.. but hang in there.. Never think negative.. It just won't get you anywhere.. Always think you will beet this.. Never let yourself get in that dark hole.. Its so hard to get out.. Talk about it as much as you need to.. Its important too..
Love you all and thinking of you
Michelle
[QUOTE=Michelle94;3826886]tigerlily11,
I started with the rsd in my right hand.. Well it actually started from herniated dics.. but I didn't start with the RSD symptoms until it hit my right hand. I experienced burning in the palm., minor swelling, color change.. I felt like pin were in my finger tips.. In about one month in went to the left hand.. same symptoms.. The burning was horrible.. I use to work at a drs office and in between pts I would hold a frozen water bottle to stop the burning.. Not knowing that cold is the worst for RSD.. My palm of my hands looked deep purple and red.. Looked like I had a glove on..
Slowly it started in my feet well knees down.. I had a weird sensation.. electrical shock feeling.. very sensitive to my legs, but not if you touch them only if I would drop something on my foot etc.. In two yrs the pain just went through my body turning into a flu like feeling.. deep bone pain down my thighs.. My face would burn.. It comes and goes.. I wouldn't sleep at night.. I felt the erge to move around all the time.. Come to find out that, that was muscle spasms. I still get that... Usually I feel most of it the minute I sit down.. I would walk for hrs cause I was afraid to sit down... Then my feet started swelling only the bottoms, color change burning.. I couldn't even touch the floor.. You can tell when it spreads.. You get the electrical shocks, just a weird feeling I cannot explain...
I want you all to know.. I am here for all of you... I know ita a long road.. but hang in there.. Never think negative.. It just won't get you anywhere.. Always think you will beet this.. Never let yourself get in that dark hole.. Its so hard to get out.. Talk about it as much as you need to.. Its important too..
Love you all and thinking of you
Michelle[/QUOTE]
Michelle i would love my ortho Dr. to meet you. He is so ignorant to RSD. He says RSD doesn't spread and that it only was documented once in the 1960's! He also says how it is not chronic that is just gets better and goes away! He has no clue. I am looking for documentation/articles to take in for my next visit. Donna
Hi again. I have an appt for March with Dr. S. My Rsd has spread from arm to feet my pm dr. readjusted my meds(he feels if you don't control the pain the brain continues to send overflowing signals that can find different pathways and that is how RSD spreads) which i wasnt happy about but i have to trust someone. i did scs trial and got sensation in whole body-now my husband thinks that is great b/c if i get an implant it will also cover my feet. He wants me to do scs to prevent spreading. Although i havent read anyone that has a SCS and loves it longer than 6months. I want to wait for Dr. S appt to know all of my options. However, i keep thinking- ketamine isn't it street name LSD? Why would i put large doses of that in me? And it sounds like everyone gets boosters and continues on some meds. The woman that had ketamine coma and is now pain free-how long will that last? What will this do to my brain in 10 years? But then i think maybe it will work. I am so torn and yet feel so pressured to do something. I am sorry to sound so negative but this is my reality. Donna





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