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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


In 2004 I had a bad fall, I broke my tail bone and damaged some nerves in my right leg. Back in Sept of last year, I fell again, hurting my back once again. I went to the dr, I have Spinal Stenosis, Degenerative Disc Disease and some Arthritis in my spine. I've had MRIs, Bone Scans and Xrays. In April my leg gave out and I hurt my right ankle very bad, I was already going to the Pain Clinic for my back, I went in with a very swollen red cold painful foot. I informed the PAC that my mother in law has RSD, when my mother in law seen my leg, she asked me what my symptoms are, after I told her she said my leg looks just like hers when the RSD first took . The PAC tried so hard to say it wasn't CRPS, everything from shingles to some other limb problem. I walked out of there in tears, Well I hobled out lol. The next day I went to my family dr and told her what the PAC said,she gave me another set of xrays just to make sure when I fell the swelling wasn't a broken ankle, she came back in the room looked at my leg and said that is NOT shingles that is CRPS. I went back to my pain clinic and the PAC sent me to a dermatologist, again CRPS.. My pain PAC tried everything to make it seem like it wasn't CRPS, I had sores on my leg.. Finally after 2 Dr's so far saying yes it's CRPS she started to give me Sympathetic nerve blocks. By the way, at this time I've Never met the Pain Clinic Dr, just the PAC. The first one worked great, I went from a 9 to a 3. It lasted a few weeks, I went back for my follow up and she had me set up for another injection, again worked well for a month or so. She set me up with this rehab place that uses lasers on the affected area for CRPS, so I went to the appt with them. I laughed at that guy, when he said we will be putting a laser on my leg the size of a ink pen. I can't even have pants touch my leg how in the world could i live through that. So I went back to my Pain PAC and told her, I wont go back there. I will do PT but not that kind. That made her a little upset. Well I shut my pinkie in the door, in Aug The sensitivity started the swelling in my left hand, everything that first started with my leg. She had me go get an xray, my finger was broken, she flat out told me CRPS doesn't move.. So I came on here and asked the wonderful people on here about it, and they all said they are living proof it moves and CRPS/RSD has a mind of it's own. I went back and told her I can get about 10 peoples stories, of experiences with CRPS/RSD, including my mother in law. She just walked out on me. Well Since I wouldn't go back to the rehab place she sent me a letter saying they wont treat my "Right leg pain" anymore. They just stopped doing anything for my back, when my leg started. I called my new family dr *my family dr moved back to her home town* and let her know that I wanted to switch Pain Clinics I wanted to see a (DR) who knows what CRPS/RSD is not some PAC who doesn't know crap. Like i said in my post a few weeks ago I was having horrible leg cramps and through out the day I just kinda tried to walk them out, and I was walking to my daughters room and a leg cramp hit me so hard I dropped on the floor in tears, and the result from that my toes curled under all distorted my foot makes a L Shape, my foot is very weak, hard to walk on. I can't move my toes or my ankle. THe PAC has been upset with me a few times, I missed an appt because my daughter got very sick and we had to go to the ER, so I missed my appt. I told her I'm a Mother First, a Crohns Patient second and living with CRPS 3rd.

Sorry that I just wrote a book and it's probably moves around a lot, My brain burps a lot lately lol.





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