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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


I know "addiction" is a fear of a lot of people in the early time with rsd,but it shouldn't even enter your mind. We take them to help with the horrible pain of rsd and as long as that pain is there you won't become addicted. There's no way. Your body will become dependent which is totally different. After taking any drug for awhile, you have to taper off it, that goes for all classes of drugs, not just pain meds. The others, anti-depressants, lyrica,cymbalta,neurontin.....none of these can be quit cold turkey if you've been taking them for a long time. Addiction isn't a word that can be used in conjunction with us. So, please don't worry about addiction.

Have you tried lyrica or one of the other meds? They're supposed to help with the burning because that class of drugs works on the nerves which is where the burning originates.

Pool therapy I agree is awesome. I wouldn't have walked on my own again if not for that. I thankfully, back then, didn't have touch sensitivity so it was probably easier for me but it got me on my own 2 feet again even though I hurt more after. It's usually like that though when we deal with doing anything at all, not just pt.

Hugs,

Karen
[QUOTE=Gaollan;3829582]I know "addiction" is a fear of a lot of people in the early time with rsd,but it shouldn't even enter your mind. We take them to help with the horrible pain of rsd and as long as that pain is there you won't become addicted. There's no way. Your body will become dependent which is totally different. After taking any drug for awhile, you have to taper off it, that goes for all classes of drugs, not just pain meds. The others, anti-depressants, lyrica,cymbalta,neurontin.....none of these can be quit cold turkey if you've been taking them for a long time. Addiction isn't a word that can be used in conjunction with us. So, please don't worry about addiction.

Have you tried lyrica or one of the other meds? They're supposed to help with the burning because that class of drugs works on the nerves which is where the burning originates.

Pool therapy I agree is awesome. I wouldn't have walked on my own again if not for that. I thankfully, back then, didn't have touch sensitivity so it was probably easier for me but it got me on my own 2 feet again even though I hurt more after. It's usually like that though when we deal with doing anything at all, not just pt.

Hugs,

Karen[/QUOTE]

Dear Gaollan and Karen,
I am a first time user of this board, I was so excited to find it, especially since so many people have never even heard of RSD, yet know anything about this unfortunate disease. I wanted to write to both of you because I can relate to what you both had to say. Gaollan, my doctor wanted me to get the spinal cord stimulator also. I have had RSD for 13 years since my first knee surgery in 1996. I have had 6 more since then and therefore my RSD has been constantly acting up. I have a very uncommon bone disease where the blood in my left femur does not go to the bottom of my femur causing the bone to die and then break off like a twig. The surgeries i have had last for numerous hours, and I am cut from my thigh to my shin. Then the Dr. grafts bone from other parts of my leg to fill in the whole, it is quite extensive. I have had another piece of bone break off a year ago, but my Dr. said he can no longer graft anymore bone. He said I only have 2 choices, one is a risky experimental lenghty surgery, and the other is a total knee replacement. The only problem with the knee replacement is that because of this bone disease I have (osteochronditis desicans) the knee replacement will only last 2 to 3 years. Since I am only 48 years old I do not want to have to have a number of knee replacements. The bone pain I can handle most of the time but the RSD is the worst!!!
Karen, you were so informative with your response to Gaollen and so kind and understanding I just wanted to let you know that.
Gaollen, I have opted not to have the spinal cord stimulator, because of these other problems I have with my leg, but from what I have read they have ben quite successful. I have recently started taking lyrica and found that to help with the burning pain. I am also on the Duragesic patch, and cymbalta, I have found this combination to be working so far. The problem is my body builds up such a tolerance and then the meds don't seem to work as well. I also was on oxycontinin 80mg. 3 times a day with a number of other meds for many years. I stopped taking all the pills (17of them) one Dr. had me on 4 years ago, while I was working and raising 5 kids. I don't know how I did what I did all I know is that it was horrible commming off them as I flushed everything down the toilet one day and stoppped cold turkey. It was the most horrible experience I have ever had.
Sorry if I for rambling on and on, but as i said this is my first posting!
Thank you for your time and understanding!
ALL MY BEST,
MBO1221





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