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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi, I would like to share with you my visit to an Orthopeadic Consultant last week. (I have rsd in both legs and both feet) I went to see this person in the hope that there was something that could be put into my shoes to 'cushion' my feet and give me a bit of comfort so that I will be able to do abit of walking well this is how it went.

Firstly he told me that there was no cure for rsd:mad:
He then referred to an ealier appointment I had in July 08 with another consultant who just looked at my feet and said its RSD and there is nothing that can be done. (To deviate just a little when i was having an infusion last month my consultant left my medical records with me, and having nothing to do for a while decided to read my notes, 95% I couldnt even decipher but one letter caught my attention it was a letter from the july meeting. The letter started Ms ........ is a 'rather hefty lady' to which i was very upset.) Any way getting back to this recent meeting the consultant said that the doctor in july was a top notch consultant who was an expert in his field to which I said 'he is in Orthopeadics but not RSD. He wasnt very happy with this comment but as far as I am concerned I was making a truthful observation.
Then he said that all that could be done for me was Physio, he asked if i had physio to which i replied yes i had and it aggrevated the rsd and was too painful to be touched so physio hands on is to aggressive to which he replied
I shall write this in capitals so you dont have to read it twice - THE TYPE OF PHYSIO I RECOMMEND IS TO HAVE A COLD COMPRESS ON YOUR FEET FOR 5 MINUTES,:eek: THEN REMOVE THAT AND HAVE YOU FEET RUBBED OVER GENTLY WITH A COTTON WOOL BALL FOR A FEW MINUTES,:eek: AFTER THIS YOU FEET NEED TO RUBBED VIGOURSLY WITH A ROUGH OBJECT FOR A FEW MINUTES.:eek::eek: THIS HE SAID WOULD STIMULATE THE NERVES AND THEY WOULD LEARN TO REACT TO THE DIFFERENT SENSATIONS IN THE SKIN AS RSD IS IN THE SKIN.:mad:
I replied to this - there are people who have had RSD for over 20/25 years and if this was the cure for RSD I am sure that everyone would now be cured.
By this time I didnt care anymore what I said as this was a total waste of time. He then said that he would refer me to the Orthotics clinic I said I thought that this was that clinic as the appointment I had was with that department he said no it wasnt and by this time I had had enough.
I tried to explain to him that I knew abit about RSD by talking to people on message boards and meeting people at research events, the fact that I was suffering with the condition and that I was under the top consultant at the Pain Management Clinic and he was the top consultant in the RSD field.

I DECLINED HIS OFFER OF PHYSIO.:mad:

I would like your comments on this saga.:dizzy:

Thanks Jools :)





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