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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Wow.....so happy to hear about your son!! That poor guy went through so much!! Kids are totally amazing!

My 1st advice is to find another pain doc asap!! He obviously had no regard for you as a person let alone a patient! People like him make me sick. Has he even treated other rsd'ers? Seems like he hasn't. It's obvious that he will never give you the proper, caring treatment you need so desperately. Wish you lived near me cause my doc is super awesome!!!

As for vits and minerals. Vitamin C and grapeseed extract. I read a study some docs did and patients with a broken bone were given either placebo or vitamin C at a dose of 200 mg, 500 mg, or 1500 mg daily. 10% of those given placebo developed RSD, while less than 2% of those given vitamin C in the 500 mg or the 1500 mg daily dose did so. The 200mg had some results but not enough which is why they left it off the statistic part at the end. So, not sure really if it makes a difference after the fact, but I know quite a few people who take daily vitamin c supplement and they say it helps. It reduces inflammation and pain.

Grapeseed extract helps prevent spread. There are many who take this and it's proven quite effective. A member who died a few months ago began taking it to see if it would work. He then stopped taking it to see what would happen. It wasn't long before he felt rsd pain in new areas and began taking it right away. The other pain stopped and didn't spread! :) It's worth doing this one for sure.

Magnesium helps with muscle spasm and weakness. Calcium is good for the bones and also aids in neuromusclular activity. We all need extra calcium anyway with rsd because it gives us osteoporosis. Vitamin E (antioxidant, maintains healthy nerves) and then
vitamin D for muscle spasms and pain.

Those are all the ones I've seen mentioned over and over that really seem to help. We need all the help we can get! LOL

Hugs,

Karen





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