It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Rsd?
Dec 28, 2008
I had a repeat left Carpal Tunnel Release on a Monday and started having just a bit of pain after the meds wore off w/the exception of having a burning pain in the back of my wrist when I turned it for any reason. At first, I attributed it to the way I was holding my hand after surgery, but I soon learned this was not the case. By Friday, I was having pain that had me crying because it was shooting up to my elbow and shoulder, and the back side of my left hand was swollen and discolored. It made no sense to me.

I went to the ER and they gave me a brace! I was angry! I work at that hospital and they were not taking the amount of pain I was in seriously! They gave me NOTHING for pain. All I wanted was some type of injection to take off the edge! Anyone who knows me knows that I am not someone who takes much meds, other than Ibuprophen for occasional headaches. At 5 am on Saturday, I called the ER back because I was unable to sleep that night. I asked them if they would give me an injection because the pain was unbearable and I had not slept most of the night, they told me that perhaps they can give me a pill, but were not sure if they were going to give me an injection. I did not want to go through that whole ER scene again only to be discharged w/out treatment so I stayed at home and cried. I did not know what to do.

At 8am, I called the Orthopedic Surgeon on duty and asked him what I should do. I was crying. He told me that he did not know what was going on. (He was not the surgeon that performed my surgery). He contacted the surgeon that did the surgery and told her to call me. When she did, she asked me a bunch of questions and then stated, Oh My God, I believe you have RSD. In my capacity at the clinic, I used to request authorizations for patients for injections who had RSD, but all that I knew about it was that it was INCREDIBLY painful. I did not know to what extent. She met me at the pharmacy and wrote me an Rx for a medication for nerve pain and one for something psychological to sleep. I only took the one for nerve pain and some of the narcotics I had left over from the surgery. (I think). The memory issue is definitely a factor.

My hand began to lock up and at one point; I was totally unable to move any of my hand. It was out of my mind painful just to try to wiggle my finger tips. I was sent to PT and as the Therapist began walking towards me, I started crying and pulling my hand back. I told her that under no uncertain terms, she was NOT going to touch my hand, I donít care what she felt she needed to do for me as far as therapy goes, she was not going to touch it. I would do it! She agreed and she showed me some exercises that I needed to push myself through. I did them every waking moment that I could think of.

I forced and pushed myself because I was told that I was very fortunate that it was discovered early and secondly that PT could make all the difference in the world and the reason for the misfiring from the brain was because one of the nerve receptors were off track and that I had to force it to move or I would be in this much pain for the rest of my life. I did what they told me. I hated it. I was told by my PCP that I would live on Morphine for the rest of my life because he has 3 patients who are currently living in that capacity w/this diagnosis.

But it did start to get better. In fact, it has been about 4 months now and it does still get better more and more, but it is a snailís pace, as far as healing goes. The weirdest thing is the other day, I woke up and where my wrist was locking, (the last place that I was lacking range of motion), was now gone. I cannot tell you how elated I am. I feel as if I have been given a second chance in life and I will pray for those of you who are struggling w/constant daily pain. I cannot even begin to imagine what life would have been like had I not been able to even be at this point. My heart truly goes out to each and every one of you.

As far as RSD goes, because I feel as if I were given such a huge blessing I am not sure that it is truly RSD, because from what I have read, each of you are continuing to suffer tremendously. The other piece of the puzzle that makes me wonder is because from what I have read, the pain can move to a multitude of areas but I found it bizarre that now that this has gotten much better, the worst of my symptoms are still insanely bizarre which is somehow it has all come back to the original surgery site and now whenever I hit that area, (which is in the lower to mid palm of my left hand), even ever so slightly, (ie: a piece of paper breezed by it the other day) it shoots me to the moon! It is as if I am receiving an electric shock that continues to reverberate for a number or seconds and I can barely catch my breath because the pain is so intense. I have not read anything about the pain being in the injury site and am not so convinced that what I have is really RSD.

The one thing that I do know is that as far as not being able to concentrate well, losing my ability to find words, etc. that is very evident and quite frustrating. Also, I am very concerned about going back to work because 90% of my position is typing on a keyboard and I am a one handed typer now because I live in incredible fear that I may tap my hand and lose my mind. I am also unable to drive because I misinterpert what the other cars are doing. I feel as if I have lost my ability to live life as I have known it.

Any feedback would be greatly appreciated! Take care and God Bless you all!
Re: Rsd?
Jan 3, 2009
[QUOTE=PPL;3831195]I had a repeat left Carpal Tunnel Release on a Monday and started having just a bit of pain after the meds wore off w/the exception of having a burning pain in the back of my wrist when I turned it for any reason. At first, I attributed it to the way I was holding my hand after surgery, but I soon learned this was not the case. By Friday, I was having pain that had me crying because it was shooting up to my elbow and shoulder, and the back side of my left hand was swollen and discolored. It made no sense to me.

I went to the ER and they gave me a brace! I was angry! I work at that hospital and they were not taking the amount of pain I was in seriously! They gave me NOTHING for pain. All I wanted was some type of injection to take off the edge! Anyone who knows me knows that I am not someone who takes much meds, other than Ibuprophen for occasional headaches. At 5 am on Saturday, I called the ER back because I was unable to sleep that night. I asked them if they would give me an injection because the pain was unbearable and I had not slept most of the night, they told me that perhaps they can give me a pill, but were not sure if they were going to give me an injection. I did not want to go through that whole ER scene again only to be discharged w/out treatment so I stayed at home and cried. I did not know what to do.

At 8am, I called the Orthopedic Surgeon on duty and asked him what I should do. I was crying. He told me that he did not know what was going on. (He was not the surgeon that performed my surgery). He contacted the surgeon that did the surgery and told her to call me. When she did, she asked me a bunch of questions and then stated, Oh My God, I believe you have RSD. In my capacity at the clinic, I used to request authorizations for patients for injections who had RSD, but all that I knew about it was that it was INCREDIBLY painful. I did not know to what extent. She met me at the pharmacy and wrote me an Rx for a medication for nerve pain and one for something psychological to sleep. I only took the one for nerve pain and some of the narcotics I had left over from the surgery. (I think). The memory issue is definitely a factor.

My hand began to lock up and at one point; I was totally unable to move any of my hand. It was out of my mind painful just to try to wiggle my finger tips. I was sent to PT and as the Therapist began walking towards me, I started crying and pulling my hand back. I told her that under no uncertain terms, she was NOT going to touch my hand, I donít care what she felt she needed to do for me as far as therapy goes, she was not going to touch it. I would do it! She agreed and she showed me some exercises that I needed to push myself through. I did them every waking moment that I could think of.

I forced and pushed myself because I was told that I was very fortunate that [B]it was discovered early [/B]and secondly that PT could make all the difference in the world and the reason for the misfiring from the brain was because one of the nerve receptors were off track and that I had to force it to move or I would be in this much pain for the rest of my life. I did what they told me. I hated it. I was told by my PCP that I would live on Morphine for the rest of my life because he has 3 patients who are currently living in that capacity w/this diagnosis.

But it did start to get better. In fact, it has been about 4 months now and it does still get better more and more, but it is a snailís pace, as far as healing goes. The weirdest thing is the other day, I woke up and where my wrist was locking, (the last place that I was lacking range of motion), was now gone. I cannot tell you how elated I am. I feel as if I have been given a second chance in life and I will pray for those of you who are struggling w/constant daily pain. I cannot even begin to imagine what life would have been like had I not been able to even be at this point. My heart truly goes out to each and every one of you.

As far as RSD goes, because I feel as if I were given such a huge blessing I am not sure that it is truly RSD, because from what I have read, each of you are continuing to suffer tremendously. The other piece of the puzzle that makes me wonder is because from what I have read, the pain can move to a multitude of areas but I found it bizarre that now that this has gotten much better, the worst of my symptoms are still insanely bizarre which is somehow it has all come back to the original surgery site and now whenever I hit that area, (which is in the lower to mid palm of my left hand), even ever so slightly, (ie: a piece of paper breezed by it the other day) it shoots me to the moon! It is as if I am receiving an electric shock that continues to reverberate for a number or seconds and I can barely catch my breath because the pain is so intense. I have not read anything about the pain being in the injury site and am not so convinced that what I have is really RSD.

The one thing that I do know is that as far as not being able to concentrate well, losing my ability to find words, etc. that is very evident and quite frustrating. Also, I am very concerned about going back to work because 90% of my position is typing on a keyboard and I am a one handed typer now because I live in incredible fear that I may tap my hand and lose my mind. I am also unable to drive because I misinterpert what the other cars are doing. I feel as if I have lost my ability to live life as I have known it.

Any feedback would be greatly appreciated! Take care and God Bless you all![/QUOTE]

Hi there..
I tend to think that you do have type 2 RSD and that all your hard work doing your own PT has put your condition into a milder state..
It is opinions such as your PCP's QUOTE: "I was told by my PCP that I would live on Morphine for the rest of my life because he has 3 patients who are currently living in that capacity w/this diagnosis" that cause common misconceptions about RSD.

Some people get a minor case of RSD or moderate and some are severe.. it is just that alot of the minors and even moderates just dont get diagnosed.. they get misdiagnosed or just ignored as a injury that didnt heal right, it is sad but true

RSD/CRPS can be put into a milder state by early therapy be it physio or other means such as blocks (helps for some) or even some meds such as ketamine or lidocaine.. but mainly by early intervention.. the earlier the physio and nornal movements were resumed the better chance that normal function and reaction will reocur. am I making sence? It sounds like you realy worked at getting normal movement back and that is half the battle, the rest tends to fall into place..

I realy think you should credit yourself with your improvement and just know that not all of us have spread.. and not all of us get worse..
If you have been getting better hon it is because of your perserverence and hard work!

:wave:
huge kudos.. EVERYONE TAKE NOTE!





All times are GMT -7. The time now is 02:26 PM.





© 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!