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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


*Big Hugs* I'm sooooo sorry you're having such a bad time. I know how you feel though because I had a horrific time after the one and only block I had done. I should explain that the rsd was in both legs,feet,hip,hands,arms and tops of shoulders at the time. So....yeah, my whole freaking body felt as if it were being ripped apart. This went on for 2 months. 20+ pain level. I have never, ever met anyone else out there in almost 6 years who had a flare last that long after a block.

I'm baffled as to why the heck there was so much time between blocks!!! They're supposed to be given at the rate of 1 or 2 a week, depending on the doc and also depending on the doc and the patients reaction will do 3 min to how ever many as long as it's working. The reason for giving them in this manner is because in order for them to be effective and build up to longer relief each time, they have to be given no more than a week maybe 2 apart.

IMO since you're in so much pain, tell your doc there's no way you're doing anymore. Remember he works for you not the other way around. He can't make you get another one. Explain exactly what happened. Write it down right now so you don't forget. Put down the only benefit you got from it, how long the warm up in your leg lasted, how long after the block the pain started, keep a running record of how bad your pain is, exactly where it hurts and what the pain feels like. It's very easy to forget things when you're in so much pain so much better to write it down right now so he can have a clear picture of what you went through. Let's hope it's past tense by the time you talk to him or see him.

Hang in there. It will ease up soon. Oh, I am very against the scs myself. I've known a lot of people who've gotten one and really regretted it. The biggest thing after the fact was big time spread. IMO it's not an effective treatment and never was. Dr Schwartzman, a top rsd doc, doesn't do or recommend the scs now because of how much worse things are after its done.

Hugs,

Karen





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