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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Marlow,

Poor thing, you have so much to think about right now. Try to relax as much as you can until you go to the dr. Normally I dont comment on the boards much because during my flares I dont have the energy to even check my email, however, I was drawn to your post. You remind me of when I was searching for the reason for my chronic pain issues and boy it was not a fun journey, so I know what you are going through. I hope that you will find answers soon. I just wanted to tell you that everyone feels the rsd pain differnetly. That is why it is now Complex Regional Pain Syndrome-if that is what you have. The symptoms and clinical diagnosis can be very complex. As I let you know in a previous post, some people manifest all the tell tale signs, others show no observable signs, as in discoloration, swelling, etc. Some people with Rsd dont even have the severe pain, believe it or not, but from my research this is more on the rare side because most will feel pain in some form. I didnt have burning pain or discoloration to begin with, thats why I was misdiagnosed, thats why I am so big on other opinions, talking to other people, asking direct questions to your drs because Im more then certain that the time period I was misidagnosed I could have had the early treatments and possibly gone in to remission.
Of course, that is all hyphathetical and sometimes its nice to wonder what if it happened another way, maybe I wouldnt be 27, married, a mother of a toddler and on social security disability. In reality I have no idea how I would be if I received early treatments, just hopes.
But in telling you this its not to scare you, I just want you to have someone elses opinion and some thoughts for your dr. Whether you have rsd or something else, the bottom line is you are experiencing pain and you have a right to find out what is causing that pain. Just keep in mind that just as we are all different, we all experience pain in a different way. I hope that you will meet a dr who will think out of the box and help you heal. You are on the right track, you are arming yourself with education. I have a friend I met through one of the sites and she actually has no discoloration and no outward signs, if I remeber correctly I think she also hasnt experience the burning pain, but dont quote me on that one. When I first met her I felt so different because as time has passed I have developed severe discoloration on my foot and my arm and I felt so different but thats just an example of how complex this monster can be.
Lets really really hope that you dont have this though! ;-)

Ok, ugh time to take my medicines, fun fun.

I will keep you and your lovely family in my thoughts. Shannon





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