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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi Pitboss,

Find the best RSD doctor and PT possible, as soon as you can. If you haven't had RSD for very long, a stellate ganglion block (or series of them) could work wonders.

Neurontin is a tough drug, I have been on it for a while and I'm starting to hate it. Other anti convulsants that work in a similar manner (that many on this board talk about) are Lyrica and Topamax. I've tried the Lyrica and I found it worse for me than Neurontin, but you may tolerate it better.

Like I said above, it's critical that you find a really good doctor really fast. PT is important, too. A lot can happen with RSD in the span of just a month or two, especially when newly diagnosed. Are you close to the Cleveland Clinic? I am almost certain that they have a very good team of doctors there that specialize in RSD. Others on this board might know more about that....Or try googling it.

Good luck, Sandy
[QUOTE=Sandy325;3877400]Hi Pitboss,

Find the best RSD doctor and PT possible, as soon as you can. If you haven't had RSD for very long, a stellate ganglion block (or series of them) could work wonders.

Neurontin is a tough drug, I have been on it for a while and I'm starting to hate it. Other anti convulsants that work in a similar manner (that many on this board talk about) are Lyrica and Topamax. I've tried the Lyrica and I found it worse for me than Neurontin, but you may tolerate it better.

Like I said above, it's critical that you find a really good doctor really fast. PT is important, too. A lot can happen with RSD in the span of just a month or two, especially when newly diagnosed. Are you close to the Cleveland Clinic? I am almost certain that they have a very good team of doctors there that specialize in RSD. Others on this board might know more about that....Or try googling it.

Good luck, Sandy[/QUOTE]





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