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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index

RND is the same as RSD. It's what they now commonly diagnose kids and young teens as having. Why, I don't know but that's what they do. This has come up before over the past year or so. I wouldn't even know if it hadn't. It means Reflex Neurovascular Dystrophy which is just another name for RSD/CRPS and the many other names rsd has been called by since the Civil War.

I'm sorry you have this and I sooo hope you can get treated right away and get into remission. I'm going to tell you what generally happens. I know it's a lot to absorb so print my post out if you need to or have your parents read it. Ask all questions that you may have. The only "stupid" question is the one you don't ask. :)

The treatments are the same at any rate. The "common" course of action is PT,blocks,meds. For you, being only 16, the meds part won't be the same as what we all take. depends on the doc but I know for teens that they might give neurontin,lyrica,cymbalta or an antidepressant but really try not to give any pain meds. Some docs do.

The pt, again depending on the doc, can do the lets keep the limb functional, keep away atrophy and let's not cause more pain. Others will go the really strenuous, hours a day pt where they tell you push through the pain. I disagree with this approach because it hurts, not help.

The blocks are given in 2 places depending on where the rsd is. If it's in a leg, it will be the lower back or lumbar area, called a lumbar block. Pain management doctors are the ones who do these kinds of things. Different docs have different schedules as to how often they are given. It can be given 1 time a week, 2 times a week or once every 2 weeks. The combos are many and something only the doc can tell you. If the rsd is in the arm, the block is given in the neck, called a SGB, or Stellate Ganglion Block.

Treatment has to be started as quickly as possible. Ideally within the first 2-3 months. The blocks are usually the first thing done because early on the pain is still sympathetically maintained. Once the pain is independent, it won't respond to blocks.

The main thing is to keep moving so you don't lost the limb affected. By that I mean losing the use of it not losing it from your body. LOL If you're very sensitive to touch you should start a desensitization "program" now. All that means is taking very soft things and rubbing it on the limb with rsd and working up to rougher feeling things.

A BIG NO NO, DON'T USE ICE!! Ice is bad because it makes the pain even worse and it also makes our blood vessels constrict even more. We already don't have proper circulation and don't need to make that worse in any way.



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